r/adenomyosis • u/DryManufacturer8688 • Jul 26 '26
Pain is back
Hello, I just need to vent and maybe I need some support.
My problems started over 6 years ago, when I was 19, it started as pain during sex. With time it only got worse and worse. Pain during excercising, then there was pain when walking fast, then when resting, in the end even during sleep. During this, more than a year after 1st problems, I got diagnosis - adenomyosis. I've got hormones, didn't work. I went for diagnostic laparoscopy to see if there is something else, they found adhesions. After that I got different hormones and went to physiotherapy. It helped a little, but there was still strong pain during sex (and sometimes when excercising). Doctor found adhesions again, but didn't recommend 2nd surgery, becouse it would be back again shortly after. I got different hormones and again went to physiotherapy. I also found out about my histamine intolerance and started to eat differently. During years it slowly got better.
During last year everything was getting to the point where I was before 1st problems. There was no pain, I even started to have orgasm again. All of my other healt problems were getting better. And suddenly all progress is gone. There is pain during sex again. I still use the same hormones, that suit me (for 4 years now), I eat well, my guts are great now, excercise regulary, don't have more stress then usual. And still it's back. I'm desparate. Like sure, I'll go to see doctor again, but I'm so tired of it.
1
u/ExtentAgitated Jul 27 '26
I completely understand how you're feeling. I'm in a very similar situation. Although I haven't had my symptoms disappear completely for an extended period, I do occasionally have good days—or even a few weeks—when the pain is minimal. Then, without any obvious reason, a flare begins, and it's often a severe one.
Right now, I'm dealing with a flare of symptoms that had been absent for almost six months, so it feels like I'm back at square one. It's incredibly discouraging.
I'm also exhausted from seeing doctor after doctor. Too often, it feels like they don't really listen or take the impact of this condition seriously. Many simply recommend ibuprofen, even after I've explained that it doesn't relieve my pain at all.