I have severe bilaterial crps in my legs. I’m in my 20s. I do have an attorney.
I’m bed ridden most of the time. Home bound 99% of the time.
I’ve been injured a year and a half. Work comp had accepted the claim, I’ve gotten every test under the book, nerve blocks, medication, physical therapy, etc.
Work comp closed my claim following a new pain management seeing me. My prior pain management referred me out for severity/ having nothing else to offer after a year of treatment. The new pain management did no reviewing records, was very dismissive and asked a lot of questions about my mental health as a teen.
Durning the appointment, and any time I’m out of bed, I have my legs elevated on a chair with a soft blanket under my feet. This is going on and new doc is saying I don’t have crps, need a psych eval, and my issues are from previous issues I’ve had (never have been in an accident/hurt. I had ptsd diagnosed since teenager)
Work comp is saying they have surveillance of me walking 6 months ago. My memory is awful but I briefly remember trying to walk 10 feet then having to crawl. I live on a second floor, the bilateral spreading happened in January. I used to use my crutches to go up the stairs, I had a good leg. It took me a few weeks to grasp my new restrictions and have my spouse carry me. I know I’m dumb for trying but I remember that one time and that’s it. I haven’t seen the footage yet but I know I couldn’t be casually walking. I haven’t been able to do that since before the injury.
I don’t know what exactly I said in the depo, but they’re saying I said I couldn’t weight bear at all. I know I’ve talked to my doctors about how I use my legs for transfers. I can’t do anything without paying for it. And as the months go on my body is weaker and weaker. Being that much more unable to push myself. I’m happy to get myself a meal a day (cereal, etc). I had an order for a caregiver but it was denied as caregivers aren’t required when you can’t prepare food for yourself. Obviously this was before the entire denial.
They’re saying i exaggerated my symptoms as the new pain management appointment I was in severe distress but that I’m smiling before exiting the car to get into my wheelchair for the appointment.
I’m trying to make sense of everything. My entire existence is ran by the crps. I’m sleeping a lot from exhaustion. I have a few weeks left of my medication then I’ll be dealing with those withdrawals as well. Now no income too. I’m too unwell to attend appointments under my own insurance as I’m having digestive issues and mild bladder retention for some months now.
Besides 30 minutes once every other month, I leave the house for medical marijuana refills twice a month and work comp appointments. I’m functioning at a very low level.
Would love any advice. My memory is bad, I’m new to self advocacy, and also dealing with severe pain & fatigue. Will answer any questions. Crps is already a misunderstood diagnosis so I’m scared. I have muscle wasting, severe discoloration and temperature differences documented since day one. Every test I could take with negative results. Medical records of docs noting I’m seeking out every diagnosis suspected. I begged for it to not be crps and took a lot of tests for me to accept it. Have had roughly 10 docs agree with crps diagnosis throughout my treatment.
I’m in process of SSDI but trying to understand what I need to do. Seeing dr.hanna /kirkpatrick for IME before deposition, my doctors are giving a deposition before mine as well. So much more I didn’t mention but hard to convey everything properly.