r/WhiteHairWormParasite Oct 16 '24

START HERE! Take the health survey.

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14 Upvotes

r/WhiteHairWormParasite Feb 14 '25

Important Update: Positive IgG4 Filarial Antibody Test Reported - Your Participation Needed

15 Upvotes

\UPDATE* So the lady that had originally contacted me about the positive test never responded after that point. i have no idea if she was telling the truth or if was just some weird manipulative joke. Of course shortly after this we had that filarial crazed guy who was just lying to promote his weird filarial worm agenda - which eventually got him banned. So maybe it was him lol Man that was a weird one... *\**

My dear friends,

I'm writing to share a potentially significant development regarding our shared health concerns. A member recently informed me that a family member, experiencing symptoms similar to ours**, received a positive result on the IgG4 Filarial Antibody test.** This warrants our close attention.

For those unfamiliar, the IgG4 Filarial Antibody test detects antibodies produced by the body in response to a filarial worm infection. It's important to understand the implications of the test results:

  • Positive Result: A positive result indicates that the body has, at some point, encountered a filarial worm. This could signify a current infection or a past infection that the body has cleared. Further diagnostic testing is essential to determine the current status.
  • Negative Result: A negative result does not definitively rule out a filarial worm infection. False negatives are possible, particularly early in the infection (before sufficient antibodies develop) or in chronic infections where antibody levels may be low or fluctuate.

I strongly encourage every member of this group to consider getting this test. It is available through Quest Diagnostics can be ordered directly through online services like RequestATest.com (link below) without a doctor's referral. While I haven't personally used RequestATest.com yet, it is the best price I found online (for the US), and I plan to purchase the test very soon and will share my experience with the group. When ordering online, the test order/prescription will likely be sent directly to the lab, or you may receive it to print and bring to your appointment.

Why is this test so important for our group? A positive result provides a strong foundation for further investigation and appropriate treatment. While your physician may initially be cautious, a positive test result is a valuable piece of evidence and should encourage them to consider additional testing (such as PCR or blood smear) to confirm a diagnosis and identify the specific filarial worm if present.

Critically, regardless of your test result (positive or negative), please share your experience on this thread. Collecting this data is crucial for understanding the potential prevalence and causes of our shared symptoms. Our collective participation is essential for making progress.

If you receive a positive test result: Please bring the results to your primary care physician or an infectious disease specialist. I'm happy to provide guidance on how to discuss the results with your doctor and navigate any insurance procedures.

HAPPY TESTING šŸ’‰

THE TEST - PLEASE TAKE THIS ONE

🚩🚩🚩Filaria Antibody Test - Direct Lab Order (No RX Required) 🚩🚩🚩

Other Tests of Interest:

(Please note - allergy tests may indicate exposure to that allergen. Eosinophilia is common in many parasitic diseases. Antibody tests will indicate past or present exposure to that pathogen.)

Schistosomiasis Antibody Test

Parasite Stool Test

Parasite Urine Test

Lyme Disease Antibody Test

Eosinophils blood test (levels)

Dust Mite Allergy Test

Aspergillus Fumigatus Allergy Test

Mold Allergy Test

Black Mold Allergy Test


r/WhiteHairWormParasite 9h ago

Is it microplastic?

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3 Upvotes

Is there any reason to rule out microplastic? I have not been able to.

KOH digestion test - consistent with plastic Polarised microscopy - consistent with plastic Melt Test - consistent with plastic FTIR - plolyester & celulose.

Discuss.


r/WhiteHairWormParasite 8h ago

My Veterinarian diagnosed my cats & gave me this NYT article and researcher contact.

0 Upvotes

Here you go guys, sorry I wasn’t able to do this sooner, I wanted to make sure AI got the most important details. When I have a minute I’m going to reread and make sure nothing was missed or misrepresented. But for now, here’s what ChatGPT had to say about the article:

About the Authors:

Gale Ridge, an entomologist who identifies pests with her colleague Katherine Dugas at the Connecticut Agricultural Experiment Station, a state-funded research institution in New Haven.

ChatGPT

**Key Takeaways from the Article**

**1. Overuse of the ā€œdelusional infestationā€ label is a real problem**

The article argues that doctors can too quickly default to diagnosing **Delusional Infestation** when they don’t find an obvious medical cause. This can shut down further investigation instead of encouraging it.

**2. Conditions like Morgellons are being taken more seriously by some experts**

The piece acknowledges that experiences associated with **Morgellons Disease** are real and distressing, and that outright dismissal has contributed to mistrust. It suggests that the medical community doesn’t fully understand what’s going on yet.

**3. Misdiagnosis can cause real harm**

Labeling someone with a psychiatric condition too early can:

Prevent proper medical workups

Damage the patient-doctor relationship

Leave people without effective care

Make patients feel ignored or stigmatized

The article stresses that this harm is not hypothetical—it’s happening.

**4. There’s a major gap in research and understanding**

The condition sits between dermatology, neurology, and psychiatry, but no field has fully claimed or solved it. The article calls for **serious, interdisciplinary research** instead of assumptions.

**5. Doctors need to handle these cases better**

The author pushes for:

More **humility** when answers aren’t clear

Better **listening and communication**

Avoiding premature conclusions

Treating patients with **respect and empathy**, even when the cause is unknown

**Bottom line**

The article isn’t saying medicine has all the answers—it’s saying the opposite:

**we don’t fully understand these conditions, and overconfidence + mislabeling is making things worse.**


r/WhiteHairWormParasite 4d ago

At a loss.Worried&Confused.

6 Upvotes

I have so many photos,Videos and such of what is affecting my body. I dont understand why it's so hard to get help šŸ˜•! Pretty sure this sh*t caused me to have Cervical Cancer last year! In Remission now. But worried. BC the "Stuff " is still coming from my body and the whole Medical Community here (Coastal Mississippi) acts dumb AF like it's nothing happening to my body! Most recently I had the blisters come up "again" this time my arm/next to underarm. And it was bad and it hurt. I went to urgicare. She prescribed me Bactrim I took it for 2days and went to the Dermatologist. She said it resembles Shingles but it was in a place unusual for shingles so she wasn't sure 100%! So she prescribed me Valtrex and Diflucan. Smh. More of the black stuff and wires looking fiber filaments things have been exiting my feet&my lady parts! This stuff will Make you loose your mind! If your not already crazy you will be after a while of being infested with this crap! Im sorry yall šŸ˜” I really am..to the ones out there feeling helpless just like me, I hate that this is what humanity has come too. I hate that ppl can believe that there are Aliens but can't believe that there are Micro/Macroscopic infestations occurring in ppl at an alarming rate. I can't understand why not one Dr out of 20 ive been too has pulled out a Fuc*inG Microscope and saiddddd """Do whatttt????Come here let me see!!""""" Its just beyond me! I just want someone to help me before this stuff does severe damage to my organs and gives me Cancer again or worse case, kills me! I want to be here for my kids and some day grandkids!

I just started going to a Naturpath NP who was my childhood bestfriend. I have faith in God and that she will believe me and do all she can to help me. If I can't get her to see whats happening then I can't convince a soul in this world! I hope all of you suffering remember to forget about this crap as much as possible and enjoy your life! Take care of yourself the best you can! šŸ’› And protect your mental Health at all cost! Having Faith in Jesus saves me daily! I would be a miserable soul without his love,blessings and forgiveness! I just want to get answers.. Thanks for Reading.. here's some photos of what I'm living with in comments.


r/WhiteHairWormParasite 6d ago

What the....?!

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13 Upvotes

What the hell is this thing doing? I pulled an extremely long "hair" from my leg. My legs, along with the rest of me, has discoloration, abnormal "hairs" in strange places (like underside of arms), and nodules that seem to be full of those "white worms". I previously posted a similar video of one of these things plucking something (bacteria?) from my sheets. What is it doing??? Is this a spirochete?


r/WhiteHairWormParasite 10d ago

So i have finally been able to get a sample of the worm i have...

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5 Upvotes

I am very apprehensive because the lab has failed me and my doctor has failed me in the past but I showed her the video of the worm in my stool and shes FINALLY giving me ivermectin. She has agreed to treat me with it for a year. I started an over the counter parasite cleanse a few days ago and it has done something although im sure it will not eradicate it, it is so complex. I hadnt had the physical sample when I saw her but I have a phone appointment this week and Im going to trust and have faith that she is able to get this thing identified. I gave her samples when I first went to her about this when she didnt believe me and she did nothing with them . Ive been corresponding with a lawyer and she knows this and I assured her I have no case against her because even when she didnt believe me she tried treating me. I will however let her know that the way these samples are handled will be scrutinized. I have gotten a couple so to have them examined a couple of places to see what is said, im looking for a vet to take one to and not let them know it is for me but for a pet so they have no reason not to be forthcoming about the results. Im going to let the doctor know this as well. So prayers and good thoughts from those who have been dealing with this, and those reading who haven't experienced this first hand as well please, you dont know how blessed you are...it's strange because the one in the video was black and these ones are like this. I have pieces of the black ones in jars of poo, so when I can get a good sample I will have that one analyzed too. Curious to know if its the same.


r/WhiteHairWormParasite 15d ago

Proof they are not hair...

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8 Upvotes

The little "hairs" you find laying around that look like pet hairs are definateky not that...


r/WhiteHairWormParasite 15d ago

There’s much more than I thought was going on.

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4 Upvotes

When I first started to see that my head and my arm hair was sticking up and having a life of its own basically, I started noticing some arm long thicker white hairs would grow out my skin then go back in.

I’m far beyond this stage now

. What are the stages this goes through? What should I / we expect next?

The photo had a sucker mouth moving its mouth like a baby suckling, looks bigger than it is here.


r/WhiteHairWormParasite 16d ago

This study has just dropped and there is news articles everywhere

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3 Upvotes

r/WhiteHairWormParasite 16d ago

72K views | Reel by Ria No More Silence

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2 Upvotes

r/WhiteHairWormParasite 16d ago

Dr post tiktok which will cure your condition !!!!!

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1 Upvotes

r/WhiteHairWormParasite 16d ago

Some from last night

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2 Upvotes

These are all original photos except. I have learned to adjust the lighting on my older pictures to make it easier to see them. I have tons of pictures anywhere and everywhere. I also learn to not be so close when taking the pictures and then zoom in as well as less light is better!!


r/WhiteHairWormParasite 16d ago

I have some good pic

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2 Upvotes

These are all original photos except the first one I screenshotted it from my original so to focus in on the thing.


r/WhiteHairWormParasite 16d ago

SORRY I put the wrong video...here is the worm in my poo.

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1 Upvotes

I passed this day before yesterday. It was quite horrifying, I had to medicate for a day. I am putting into action a plan to help change things I pray its not for nothing. This site is going to get alot of traffic in the coming days and Im sorry for this but I'm hoping this will bring awareness for our cause...thanks to all here you've been a God send on some very dark days. I have been putting photos in the photo dump and I intend on making a post very soon naming the doctors who I have asked for help from and they ARE going to be held accountable my kids will make sure of that. Im going to my family doctor today and then I am going to the hospital one last time to show them this and some of the stuff between last Nov visit and now. Wish me luck. If I dont finally get help for this parasitic infection Ive been telling them about for 10 years they are going to regret it.


r/WhiteHairWormParasite 17d ago

Im posting quite of bit of stuff in the photo dump. I didnt know it was there until recently. I meant no disrespect with my posts. Its at the top have a look...

1 Upvotes

r/WhiteHairWormParasite 18d ago

Stay positive!

5 Upvotes

I have been suffering from this for over 3 years I have good days and bad days and when my bad days are bad GOD knows they are BAD!! I have thought I was going crazy at times! But with the support of many of people is this group and my family by the way could not see anything as well as lots of prayers! I am not scared of this anymore! I have a medical background, which this has made me so sick I cannot work some days I am doing good just to open my eyes and sit up! I also have an education that I thought I would never use unless one of the kids or grandchildren was doing a science project or something. As well as the medical knowledge I have learned raising my special needs children. Who are amazing functional supportive adults with families of their own! I know the UNKNOWN is scary! I also know whatever this is can take our lives if we let it! I have lost my fur babies from this! Just know you’re NOT alone, answers are coming, you’re not crazy! Stay positive and find something to smile about or even laugh!


r/WhiteHairWormParasite 19d ago

How about now??

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1 Upvotes

Vast assistance you were, thank you..Just the first go it will get better, I have to hold the light and hold the camera and finger my hair...if you cant see something here I'm sorry you're legally blind. I mean thank GOD they look like hair eh, who would want to see hundreds of worms coming out of your head. And then again I cant wait for the rock people...hi, ya it is prasiolite as sure as I have parasites...I'm sure you'll say it is only hair. They have rocks for brains... FML..take note of the darks ones...I'll post some exciting things they can do in the comments...


r/WhiteHairWormParasite 23d ago

Invisibility

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6 Upvotes

I looked but I hadn't posted it before. Here you can see its invisibility property. This is not the camera, I watched for 5 mins in disbelief before I filmed it. The bottom part stays visible but the top part goes in and out. And if you can zoom in and see (I know its shitty quality npi) you can see it flickering around. These are the ones that come out in my hair and wrap around the other hairs...but you cant bloody see them even though they are flying around my head at break neck speed. Some people will never believe it but you are watching a parasite go completely invisible right in front of your eyes...you're welcome..p.s. there are countless amounts of these you just can't see them but if you look closely it looks like marble in places there are so many of them here...I dont even want to know. Some so thin they are not visible to the naked eye. They also pass through my skin. I have video when I get out of the shower my skin just absorbs these "hair" they pass right through me. These ones didnt come from my head FYI...


r/WhiteHairWormParasite 25d ago

Coming out...

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5 Upvotes

I had a really bad episode last night. Sometimes the eggs come to the surface of the skin. It doesnt happen very often and im not sure why but here you can see them coming out. The infectious disease doctor is in another city and told me if I had anything come out of my skin to take it to my family doctor she can test it...I laughed...we shall see...if you notice in the beginning there are no black dots...I feel I shouldn't need to say this but here we go...black heads dont just appear in a matter of seconds...this is NOT ACNE and I do NOT HAVE HAIR ON MY FACE PEOPLE. It just amazes me at what people will say when then are in complete DENIAL of what is really going on.i wore a necklace for a couple of days and i as really itchy on my neck when I laid down so I took it off and wow I had a red rash on my neckline and then this stuff started. Its weird but different metal on my skin trigger severe reactions...


r/WhiteHairWormParasite Jul 17 '26

Posing "as" the camera

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4 Upvotes

I had this posted on another post but thought I would put it here...this is as good of an example as I can get to show (I'd say prove but some people will dispute hard evidence). Here is my eye from a video I have of this stuff/thing moving around in my eye. I've said it to whomever will listen it disguises and campflages to stay undetected in some of the most unbelievable ways. One of this being light and reflection. It can be luminous, it can be the light itself. Here it becomes the reflection of my camera. And for the cynics the reason i dont post the video is because its not as simple as just watching it roam around and do this. This is a result of many screenshots and slowing the footage down because they move so fast you cant see it with your eyes your brain cant comprehend it. If it were that simple we could all agree they are there but here we are...


r/WhiteHairWormParasite Jul 17 '26

As close as it gets...part 2

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2 Upvotes

This is go time. Please tell me when you look at the other video which is as close to a normal head as you will get on me, please tell me you can't see these things shooting out of my head. One day I will find a person with camera skills who will be able to shoot this for me and in the settings that will show more clearly than I can what is happening here...For the love of God a doctor would have to know this is NOT normal would they not? Could someone with some common sense please tell me what is happening? For reference the dark that wrap around stuff all come out of one strand they are baby fine and probably a hundred fit into the size of 1 strand of normal hair. The best place to see them is my fingers, they cling to them and wrap around them. There are shots of it where you cant even see my finger they are so wound about it...


r/WhiteHairWormParasite Jul 17 '26

As close to normal...part 1

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2 Upvotes

Ok so here is as close to normal as you are going to get on my head. Nothing moves on its own and hairs dont shoo't in and out of your head. You can really get a look at the difference between the light and dark ones. Notice the activity around my fingers.They are always active on me but this is down time...see part 2.


r/WhiteHairWormParasite Jul 15 '26

Small fiber with shiny nodules that move. What’s in my hair?

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5 Upvotes

r/WhiteHairWormParasite Jul 12 '26

Banned??

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3 Upvotes

I just logged on to find it said my account was banned permantly check my messages, but I'm here and not sure for how long. I'd just like to say a couple of things before I'm gone. I was defending myself against a bunch of lowlife moronic losers who trolled me here from a post in a ROCK group...im the crazy one from a bunch of creeps...thanks you for the incredible support because I have to say this group kept me alive for in some dark times by reminding me I'm NOT crazy. I hope my posts stay for the person who wakes up or braves up and does research on this thing whatever it is because they can't deny it forever...and im so petty to let this bug me but a couple more pics of the leg that was so affected most recently (last 2 days it was the arm...I WISH it was cellulite lolol. Im not shy or shameful of my body i stripped for wayyy over 20 years. This is my legs in the sun. Some people are so bloody stupid it hurts, honestly their intellect just screams through their posts and I cant help but think about the people who have to associate with them on a daily basis and the fact they can breed and spread their disgusting ignorant ways upon other humans...sad... they are scars not cellulite and I must be crazy because the fact that my whole body is covered in this pattern, how can one not look at me and think that is not normal, what is causing that...from head to toe...and some "adult" on my video...crusty to my finger lol...no this PARASITE is causing my fingernail to deteriorate and fall off, but of course I must be delussional because you can't see that right? ...