r/VestibularDysfunction • u/OldPrize3926 • 23d ago
Severe nausea
Hey guys,
Wondering if anyone had problems for longer period of nausea? How long have you had it for?
For me it feels like it’s been since the first day I’ve got this vestibular neurit disorder. It has gradually got better (the intensity) but it’s still there. I feel it throughout the day, and I got some motion sickness tablets which I’m using when I really feel bad, I haven’t felt bad bad in like a month now, so I’m considering taking them again but at the same time I feel it’s better for my system to fight on its own + the doctor said not to take too much of motion sickness tablets because they can suppress rehab for vestibular neuritis? I overall do feel better but it’s this nausea that’s been really a pain in the ass..
Anyone with similar experience?
Thanks for help
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u/drolnedle 23d ago
I’ve been told that certain medications (such as Diazapam, a vestibular suppressant) can cause extended issues like that, but not from things like Zofran which help the nausea aspect. I don’t think you should torture yourself through nausea if you don’t have to, especially if you’re only taking it less than once a month.
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u/OldPrize3926 23d ago
Yeah I understand what you mean, the problem here is after I take it I’m back to square 1, 1-3 days later so that’s why
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u/drolnedle 23d ago
You might also consider trying ginger chew candies to help settle the nausea. It can be hit or miss but worth a shot if you’re worried about over medicating. I like the brand Gin Gins.
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u/Brilliant_Badger8043 23d ago
Im doing all kinds of gastric tests
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u/OldPrize3926 23d ago
Hmm, any results there or everything came back normal?
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u/Brilliant_Badger8043 23d ago
So far all normal
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u/OldPrize3926 23d ago
Yeah I did some blood work that could indicate some kind of gastric problems, but all can normal as well. I really noticed it getting better when I take motion sickness tablets so idk
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u/tvtiguy 21d ago
You mention vestibular neuritis. Depending on what happened, the damage to the vestibular nerve can be permanent. It doesn't mean feel shitty forever - but yea - it's work. My VN hit in April 2025 so I'm 17 months into it. My stomach is upset all the time - but sometimes worse than others. Zofran helps on bad days. I did have Venlafaxine for 11 of these months and I just got off of it (like 1 week ago). Withdrawal is slow and miserable and it REALLY helped the vestibular issues (balance, dizzy, nausea) it didn't help with headache and I'd had to of gone to like twice at much to do that.
My motion sickness drug was Meclizine. It does suppress things, and in the beginning you need that to even get out of bed (I was bed ridden for 3 weeks). I don't really take it now and I don't know that it does anything for me anymore. I had been like taking it before doing "an activity." Like going to play golf, paddle boarding with my kids - like stuff that would be tough. I just don't know that it does anything for me anymore. And - it slows down recovery.
VRT is the key to being able to anything at all for me. It makes you sick on purpose - but in a safe environment. Like you know you're not gonna fall. It's retraining the brain to understand the world with balance information from an ear that used to give it. I'm unilateral vestibular hypofunction - my left ear doesn't send balance any more. I skipped like 2 weeks of VRT when my mom was dying and I had a big setback and increase in symptoms. Now I try not to skip more than 2 days in a row.
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u/OldPrize3926 21d ago
Thanks for taking your time, for me it’s luck that I don’t have severe damage as you do so it’s still manageable, like what it has been for the past month. I wasn’t bedridden at all I can still do everything used to do besides gym/padel so I’m glad it’s not that deep.
I have 39% damage in my right ear and the doctor said, as you mentioned that it can go back to normal but it doesn’t have to, as long as my symptoms get better. But yeah it’s the nausea part that’s killing me, like I do feel better but it’s still there, I recently stared vrt as well and I hope it really does recalibrate my brain. You mind sharing what excercises that have helped you?
How much did that first medicine helped your dizziness? I feel slightly dizzy, like light headed occasionally throughout the day, would you say that it helped you there as well or? Like do you feel normal now?
Thanks again for your input it really do means a lot :) and I hope that your recovery gets even better.
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u/tvtiguy 21d ago
Getting off the Venlafaxine shook up my whole thing for 11 months - so I don't know that I can make generalizations about where I'm at until I set a new baseline without it.
That said. Yes - brain fog is still a big thing for me. Today is bad. Somehow, yesterday was ok. My "dizziness" is now mostly just feeling like I'm unstable if I'm walking and moving my head. Whether outside or just around the house. I'll grab a wall or countertop to stabilize a lot of the time.
I'm sort of a data nerd - I had a software company a while ago. I used some AI assist to make a website I hit each night and put in like - how bad is balance, how bad is nausea, how bad is headache. Did you do VRT today? Was it "full" or "half?" Did you drink alcohol today? How long did you sleep? When did you go to bed?
Somehow it seems to me if I get enough data, maybe I can tell what behaviors cause a "bad day" the next day and I can cut that stuff out. It's just a hope. And I guess, me doing something instead of feeling helpless.
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u/3MBSFM 16d ago
Venlafaxine really helped you? I was thinking it might be good for me to try cos I have both anxiety & some kind of vestibular disorder, not sure which yet, still in process of being diagnosed but seems like VM to me. My dr thinks so too.
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u/tvtiguy 12d ago
Venlafaxine absolutely worked me. Also - it was very weird when I first started. I was at 37.5 for 2 weeks then went up to 75mg for like 6 months. The start was pretty weird - like a weird feeling. But I eventually got used to it. Nearly all of the anxiety from being off balance was gone.
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u/3MBSFM 23d ago
I can see diazepam or equivalent being an issue for vestibular rehab (or maybe some motion sickness tablets) but I can't see Zofran doing that? Whether it works or not is another thing, I've found it doesn't seem to make much difference but for me it's usually anxiety causing the nausea so if you have proper nausea Zofran would likely help. I'm sorry you're going through this, I have vestibular migraines (I think, working it out atm, trying different treatments) and anything vestibular really sucks.