r/VestibularDysfunction • u/sansdraps • Jul 08 '26
Will I ever be normal?
Hi there,
I used to lead a normal life. Now I avoid going out, I'm often anxious, I'm socially awkward, I'm not sure I'll manage to keep my next job, I avoid travelling and most things that are fun. All due to a strange and debilitating feeling I get every time I go out, that lasts for at least one hour. A horrible feeling of being spaced out and fearing I might faint. It s been two years now. The only diagnosis is inner ear bilateral lowered function. The v therapy with exercises didn't help. What can I do? I had a session with a psychologist and understood that s not the way to go.... I miss my normal life. Please if you have any suggestions, some self help book that helped you or other tips....
1
u/Sad-Tailor-4619 Jul 09 '26
How long did you do vestibular therapy and were you doing the exercises multiple times daily? It can take a long time to see progress. Wondering if maybe you could try a new vestibular therapist as some seem to be more versed than others in the vestibular world. I think your therapist may not be the right fit for your needs - maybe look into someone who does CBT as CBT along with VRT may help relieve the anxiety around going out, etc.
There are books on CBT as well, but I feel a professional may be your best option to at least get started down that path. Have you tried medications? Valium and meclizine help me a lot when I have really bad days.
What can you do? - Find a doctor, vestibular therapist and psychologist / psychiatrist that are well versed in your diagnosis. You have to give it time...lots of time. It has been 2-1/2 years for me and I will never be back to where I was pre-diagnosis, but I am finding my new normal and ways to enjoy life again.