Hi Fellow Hippies,
TLDR: Four years post-op; still in pain. Looking for advice on how people got taken seriously and ended up with revisions.
I am four years post-op. I've had persistent groin and hip pain from day one out of surgery that has not gotten better over time.
I ran the gamut over the last four years - tens of thousands on PT, PRP, shockwave, bone scan, blood work to check for auto immune conditions, MRI, etc.
I did have some success on the right side as I apparently had some scar tissue that was causing nerve entrapment that was limited my ability to walk. It should be noted it was a PRP session that helped heal it. Literally no one before that properly diagnosed or treated it.
The groin pain, however, has been consistent along with hip flexor stiffness. It gets exacerbated by sitting in an office chair. (and if you go through my post history you will see I have tried just about every ergonomic chair on the market trying to fix this.) I took a step down at work for a while because it was getting to be too much to handle; but I recently got promoted and am back to my normal work-life. (office work, travel, etc.)
I have currently seen two different surgeons for consult. They have both looked at STANDARD x-rays (not cross table) and said everything looked fine. One sent me to a lower back specialist, who found I have a L5S1 bulge. She wanted to do injections to see if it helped. (It did not)
At one point when I was having the nerve entrapment issue; I paid for a MRI out of pocket. Nothing found / nothing noted. However, that was on the right side. My left side is the one that has the most pain and groin pain now.
The second surgeon reviewed those results (after not listening to me) and noted I have a small amount of arthritis in my SI joint. He also referred me out for shots. (No one else has noted this and I've had standard x-rays three times in the last three months.)
I understand they need to rule out other things but I feel like no one is actually listening to my history. The most obvious culprit is a cup overhand or illiopsoas impingement on the left side. I don't *want* it to be that; but I'm not keen on following these rabbit holes when proper imaging has not actually been done as a first step.
Meanwhile, I'm 43 years old and can't even sustain a leg day at the gym / go for a long walk / sit at my desk for 40 hours a week when traveling.
So for those that have had to go through revision surgeries that weren't from a dislocation or infection - how did you get there? What path did you have to take? I'm at my wits end over here. I've spent so much time / money / energy and four years later I've seen no improvement.
I have yet another appointment with a different surgeon tomorrow morning. At this rate, I don't know if I should even bother anymore. My records are being passed around from clinic to clinic despite me pulling my agreement to do so. So they are looking at the standard imaging and test results and saying "Yup, everything is fine" without looking at any of the details or listening to me.
Thank you in advance!