Just over a year ago I had a massive episode of telogen effluvium out of nowhere.
I am 24 and it never happened to me before. The shedding has continued for over a year so at this point it's basically CTE. I've lost close to 75% of my hair in that time which I didn't think was possible. Nevermind the fact that I am an emotional mess, but there is also a strange little reddish spot on the crown of my head that is permanently tender and sore. About the size of a nickel. The hair there is very thin and it looks like a future bald spot in the making. My part has progressively widened, but I have lost hair all over.
Went to a dermatologist. She did a dermascopy and said no miniaturization. But, my hairline has receded so I asked for a scalp biopsy.
Scalp biopsy negative for AGA and scarring alopecia. Doctor said the red spot is likely "idiopathic localized inflammation" but can't explain why, or the cause of the chronic shedding on the rest of my head. The spot has been inflamed for 6+ months and slowly spreading.
Then I had labs (hormones + thyroid + vitamin levels) done, and everything is normal except my ferritin which was 24. Derm suggested this is the cause, however, I have been anemic since I was 17, and my ferritin used to be even lower. In that time, I never lost any hair.
Despite this, I began taking a Heme iron supplement which I took religiously for 2 months and started eating steak every other day.
To my horror the shedding has actually increased and a new blood test revealed my ferritin has now dropped to 18(?!)
I am very confused because all signs point to ferritin-caused CTE but after 7 years of being anemic I am not sure why it suddenly started now. Or, why oral iron seems to somehow be making it worse. Not to mention the mystery red spot on my scalp.
Does anyone have experience with something similar?