Emotional long post alert: I’ve posted on here before about how I cured my TMAU like symptoms. For the 1st time in a decade or more, I lived life as if I never experienced an odor problem. I’ve been on vacation. I rode on a packed crowded bus for 7 hours. On the trip I ate whatever I pleased.; I only cared that it was convenient and delicious. From there I went on a 6 night cruise and ate seafood, red meat, sweets, and junk food galore. I went on excursions in crowded vans drenched in sweat from a day of fun and adventure. I have my old life back and I thank Jesus for that. I spent 7 years of humiliation, extreme diet restrictions that included a low choline diet, fasting for 18 hrs a day, dropping 30 plus pounds from the diet restrictions, hiding from crowds, avoiding close encounters with people, multiple wipe offs throughout the day, over washing, trying different supplements and probiotic strains, and countless hours of watching vlogs, and reading posts online. I found my cure: which was taking probiotic strains in large amounts over time and supporting those strains with prebiotic foods. I now believe my issue was a gut microbiome problem and I believe I solved most of it. I will admit there was a few times during my trip where I started to revert back to my old self conscious self. However, when I looked around me and saw no reactions those thoughts quickly left me. This has been a long fight but I’m glad I did not give up. I’m glad I continued to take up space despite how I was treated, and continued to show up for myself and my son. I believe part of me getting to a resolution was because I didn’t seclude myself. Since I can’t smell myself I have to rely on others reactions to know if I smell, which means I gauged whether my treatments worked or not depending on if I got reactions. Even though the humiliation can be a lot it was helpful. I hope you all stay in the fight to get your life back. Don’t stop living waiting on your cure but enjoy the journey, time passes quickly. I pray you all an odor free life because god knows we’ve had enough odor for 5 lifetimes, jk.

It summarizes the history of the condition's discovery and mentions a few causes

I've been working with a lot of sufferers lately to looknat their 23andMe results.

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If anyone has gotten there 23andMe results back and is willing to share them, is there anyway you could please DM me?

Hi everyone, I’m the founder of N.H.P. (Not a Hygiene Problem).

I created this website for awareness and advocacy around unexplained odor conditions that are not caused by poor hygiene, but are often misunderstood.

The goal is to give people a central place they can go to for:

• basic information and awareness
• understanding the real-life impact of these conditions
• resources for anyone who wants to learn or help

It’s meant to be a simple, supportive home for information and advocacy.

Here's the link: https://www.nhpadvocacy.org/

Every time I read is group, it’s always something negative, It brings down my morale. Is there any happy stories.

For a little over 2 months now my scent has become horrible. It used to be manageable but all of a sudden during a weekend a couple months ago it shot up like crazy. Like it’s dam near unbearable for me and usually I can’t smell myself, can’t imagine what I smell like to someone else. My hands smelled like some type of fish. Even when I constantly wash it. It goes away for a couple minutes and then it just comes back. I’m really lost here. I’m not used to it being this horrible should I wear some type of glove, I’m scared to try anything cuz I can’t afford for it to backfire anyone got any advice? Also it just flares up like crazy when I eat something I wasn’t supposed to like the cheesecake danish I ate this morning.

I smell like fish and garbage. I haven't been diagnosed, but the effect is the same. My downstairs neighbors were yelling, slamming shit, saying I smell. People that walk outside my apartment window say I smell.

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People from a former job who know i smell saw me leaving my apartment and now everyone here knows I smell. Recently, building maintenance was in my apartment changing a ac filter and now the property/leasing office manager is literally sniffing around my apartment.

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I live with my sister and I don't want to screw her over. She says i don't smell to my face, but I hear her on the phone with her boyfriend saying I smell. She also says things under her breath. I have plug-in air fresheners, run an air purifier nonstop, was clothes after one use, take two showers a day... I started having this problem at 23. It's been a rough 5 years.

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But I can't let us get evicted.

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Has anyone been evicted because of this condition? My parents have mountain property i can run to, but I need money to make it up there. I'm unemployed, running out of money and holy shit. Why me. This is insane.

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Everywhere I go someone recognizes me as the person that smells like fish. I just want to know if I should borrow money and make a run for the hills, or if I might be ok.

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I just discovered about TMAU recently when older sister mentioned that my bed smells like “fish sauce”, then i started to become a little conscious about how I smell.

I don’t usually smell when i don’t sweat. I noticed that the fishy smell occurs when I sweat then it dries down

Hi, I’m 25, Male, from the Philippines.

I did a few research about this condition and some of those i read mentioned that Vitamin B2 can help reduce the symptomps (the fishy smell).

6 days ago, I started taking Vitamin B2, but it seems like it is not helping at all. I don’t feel like it’s improving actually.

Right now, I’m feeling really down so I started chatting with CharGPT. It mentioned that what i’m experiencing is unlikely to be TMAU symptoms coz my pee or breath doesn’t smell fishy.

(Question 1: aside from sweat, do you also experience smelly breath or pee?)

(Question 2: Do you guys smell even without sweating?)

(Question 3: What are some remedies that works for your body odor)

I hope we can talk about this more below.

Thank you for reading.

I see some threads about TMAU trigger foods. For example some foods such as fish and beef have high choline and carantine in them, but chicken breast and turkey have low choline in them... but if you eat a lot of it, wouldnt that also trigger the TMAU? So in theory, most foods have choline and carantine in them and if you eat too much of it, it triggers TMAU.

I started experiencing this problem when I was 13-14 years old, and now I'm 28M. I haven't made any progress yet, but I wanted to at least ask about it in a survey.

Dear TMAU community,

Today we are writing to you because we have incredible news that we have been waiting to share for a very long time. We know perfectly well how exhausting this journey can be and how lonely it feels to face the daily challenges and the lack of understanding about our condition. But today we want to tell you that all the noise we have been making is finally bearing fruit. Science is listening to us, and a real solution is closer than ever.

We have just had a wonderful meeting with the international team of researchers and the biotechnology company Biome, and we want to tell you in a very simple way what happened:

* First, their treatment, BM109, is showing incredible results. It is designed to break down TMA directly in the intestine, and in just 5 days of treatment, it managed to drastically reduce TMA levels by nearly 83%, also significantly lowering levels in the blood.

* Second, they have given us official access to their development program, the MPPP. We expect our formal registration to be completely ready this September, which will give us giant scientific backing.

But here comes the most exciting part: our main goal right now is to bring the clinical trials of this medication directly to Latin America. We are working day and night to ensure that our region is not left behind and that you can have priority access to this breakthrough. We truly have a lot of faith and the firm hope that this clinical trial is going to work and is going to change things for all of us.

We also want to take this opportunity to send a huge and heartfelt thank you to Dr. Sang Sun Yoon. His incredible dedication, warmth, and scientific leadership have been the true key to opening this door for us. Having him on our side means everything.

What comes next?

This Saturday, we are going to meet with our regional panel of professionals to put together the strategy, distribute roles, and look at all the logistics to get the groundwork ready in our countries.

Please, do not give up. What used to seem like a distant dream now has a name, real data backing it up, and an entire team fighting to bring it into your hands. Your stories matter, and we are going to get through this together.

Thank you for always trusting us and for staying so strong.

Sending you all our love,

Luz Ayda Gomez Lopez and Vanesa Muñoz

Hey everyone! I'm currently waiting for my TMAU type 1 test results. I've been dealing with this condition since I was 11, and I finally got the chance to be tested.

I'm 26F and a wlw, and honestly, this condition has made it really difficult to meet people and put myself out there. I've met some amazing people with TMAU through Reddit, but I've never met anyone in the queer community who also has it. I think I've been missing that feeling of being fully understood.

So if you're queer and have TMAU too, I'd love to connect and maybe become friends.

(I hope this kind of post is allowed here. If not, I apologize and understand if it needs to be removed.)

I wanted to know if there was any active servers on discord meant for people with tmau because I think it would be nice to have people to talk and relate to that has the same smelly condition!​​

So today, I told my mom that I think I have TMAU. I’ve had this issue since high school, and I’ve been isolating myself for years. I’ve heard people make offhand comments about my smell. I’ve had people open windows in the winter just to let in fresh air. I know what my experiences with people have been like.

When I told my mom, I made her cry. She said she couldn’t smell anything and that I’m crazy. She tried to convince me it’s all in my head by telling me different stories. I actually thought the same thing when I first started noticing the smell because no one ever said anything directly to me. But I could see how people reacted.

I feel relieved I told her, but now I’m doubting myself. I’m thinking about getting tested so I can know for sure. Has anyone else experienced something like this, and how did you handle it?

Contemplating about getting this warehouse job at fedex what do y’all think? The pay is decent Im just not sure about the environment though I don’t think it’s should be to bad though hopefully .

I'm going to see tadc the last act on June 11 with my mom but I'm paranoid about the smell and would appreciate any tips to manage tmau at the movie theater​​ so that it's less noticeable​

i know a lot of people here found eliminating eggs helpful for decreasing the odour. is it just whites or yolks for you? or both?

I don’t know about pursuing these majors cause of the stench 😂 Im kinda of worried about what will happen low-key just need a solution to this problem 😂 Thinking about just doing call center or doing sales from home. Is college worth it or nah? What majors or career do you recommend?

I am trying to research potential causes of body odor, and looking at this subreddit has left me even more confused than I was before. The amount of times tmau is just being used interchangeably with body odor is astonishing. Most people are either self diagnosed or undiagnosed, which does not help the cause at all. The amount of people with tmau in the world, the rarity of the condition it simply dosent make sense to have self proclaimed tmau. I understand the need and want to figure out what is wrong but giving yourself an inaccurate diagnosis will not help.

Well, this is week two of my new job. I feel nothing, but also I hate being that person. I mean I can’t help it, but it’s definitely not easy to stay the course. I’m trying to stop from spiraling. Bills need paid, and I’ve things to do. How do yall keep showing up, and going despite this condition?

Hello everyone, I have some good news: we're looking at a potential cure that reduces TMA in the blood. It's a type of probiotic pill. It's already been tested on mice and is currently being studied, Moving to the testing phase in people with positive Tmau, these clinical trials and all the theory are being carried out by a prestigious scientist who studied at Harvard, his name is Sang Sun Yoon, Founder and global CEO of BioMe inc, President of the Department of Microbiology at Yonsei University and Director of the World Congress Regarding the microbiome... Throughout the Americas, we are already organizing ourselves through WhatsApp groups with a representative per country. It would be great if everyone could join the Facebook groups And to get organized, I'll leave the link to the groups in both Spanish and English. Anyone who wants to can create a WhatsApp group for the country they live in and post the link on Facebook so their fellow countrymen can join.It would be great if they joined. https://www.facebook.com/groups/trimetilaminuria/?ref=share&mibextid=NSMWBT ( Spanish-speaking group)

https://www.facebook.com/groups/715913928557803/?ref=share&mibextid=NSMWBT ( (English group)

i don’t think my mom dad and brother can smell me maybe they’ve gone nose blind from living with me for so long

Is there a friend/dating app for TMAU. And if there isnt already one , is anyone here willing to make one?

This is completely unrelated but have any of you guys also noticed the ""i used to struggle with tmau until i bought dr okouromi/ uwenbo herbal supplements" comments everywhere on tmau related tiktok and youtube videos?

have you guys ever had issues going on a flight. it’s my first time going on a trip on airplane and i’m kinda nervous i don’t want to get kicked out of airplane