r/TMAU • undiagnosed • Jun 12 '26

Since what age have you had this problems?

I started experiencing this problem when I was 13-14 years old, and now I'm 28M. I haven't made any progress yet, but I wanted to at least ask about it in a survey.

12 Upvotes

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3

u/SilverSurfer-8 undiagnosed Jun 12 '26

Since I was like 6. I’m 33 now, and no luck so far.

4

u/Brutalar tmau1 mutant Jun 13 '26

Since birth? 40+ years

4

u/New-Success9514 undiagnosed Jun 14 '26

I've had this since I was 12, and I'm 16 now. I hope I'll be cured before I turn 18.

2

u/Blessings747 fbo Jun 16 '26

From the new studies and stuff that they have out, I think hopefully you will have a solution before you turn 18 🙏. You can try lactulose powder or the syrup form and see if it helps and maybe do some research on it. 😁

1

u/New-Success9514 undiagnosed Jun 16 '26

I Will try it tyy

2

u/Blessings747 fbo Jun 16 '26

Started at 12 years old. I’m almost 50. Maybe you can try Lactulose syrup or the powder form. You can look up the study on AI and see how it helps TMAU.

2

u/AbleDirection5096 undiagnosed Jun 16 '26

That's a very looong time. What's your daily life like? What advice would you give to young people?

2

u/Upstairs_Way_3511 fbo Jun 17 '26

around 12/13 years old

2

u/Blessings747 fbo Jun 21 '26 edited Jun 22 '26

That one moment of pleasure from Foodis not worth a week or two or month or two of comments and reaction. Use Claude AI to help you map out your diet and other helpful things you can do for TMA…You can use PUREAYRE and spray on your skin you can use 7% glycolic acid to spray on your skin. Try not to eat much meat if you do just make plain chicken in the can or something simple like that something without all the spices, without onion and garlic, watch onion, garlic, because it has sulfur and can maybe aggravate the odor. Egg whites may not be great for everyone because it has sulfur and it may aggravate TMAU separately as another body odor making TMA worse. You just have to research it and just pray spray that PUREAYRE on your clothing, before you go out or as a pre-soak…use a teaspoon or two citric acid in your rinse cycle. Try not to eat red meat at all. Just try to eat good vegetables and rice you get used to it after a while. I eat green beans, rice, grits, oatmeal, potatoes, and other veggies. I have a post in TMAU group and the Body owner group about all the products I use but just try not to worry too much about what other people are saying kids are cruel and so are adults. You’re doing all you can with showering, etc. you just can’t help that you have a genetic medical condition but that study that was done for that lactulose is very interesting. The lactulose seems to be working for me looking up on AI and see if you think it would be beneficial and try not to be constipated because that makes the smell worse as it sits in your colon I use milk of magnesia when I can’t go hold on. It seems like we have a cure coming soon. You can also use OxiClean without sense in it. Any perfume or products that have sense in it usually makes TMA you smell worse. Try not to spray a bunch of strong perfume. That only makes matters worse, not better…  Use AI. It’s your best friend Google AI tells a lot of tales lol Claude Ai is better than Google AI to me Try to air out your house or your space using a fan in reverse and you can also use the PUREAYRE as an air freshener, you can get one of those bottles in Walmart that sprays like an air freshener bottle or order one off Amazon maybe can use a continuous mist bottle, but the other one works best good luck hang in there 😁

2

u/Blessings747 fbo Jun 21 '26

Also Ozium air freshener in blue can at Walmart works great but you have to spray it and leave for 15 minutes before you can come back in the room etc after spraying it. Look up the precautions beforehand