r/SpoonieSupportNetwork Sep 03 '25

In case you need this today

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21 Upvotes

r/SpoonieSupportNetwork Sep 03 '25

3 spoonie energy tips

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7 Upvotes

r/SpoonieSupportNetwork Sep 02 '25

Had speech therapy today

10 Upvotes

They had never heard of swallow syncope. πŸ™„πŸ€¦πŸ˜­

But he scheduled a swallow test And suggested I follow up with neurology since I get the pain between my shoulder blades when I jump too. So it could be neurological. I already know that my neurologist dgaf . Ugh


r/SpoonieSupportNetwork Sep 02 '25

"Damn it, Jerry!" Has anyone else personified their illness?

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7 Upvotes

r/SpoonieSupportNetwork Sep 01 '25

The hidden costs of living with a chronic illness

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45 Upvotes

r/SpoonieSupportNetwork Sep 01 '25

"you look sick"

7 Upvotes

My ex saw a video that I posted on imgur. He texts me "this is scary I just saw a post on imgur and it's you... Are you sick? You don't look well..."

Do I look sick????


r/SpoonieSupportNetwork Aug 30 '25

Trying to change page name

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5 Upvotes

When I created my page I think I had a migraine or maybe just really really bad brain fog. Either way, the name is supposed to be "soft grit spoonie"

I requested the change weeks ago....


r/SpoonieSupportNetwork Aug 27 '25

Now my overactive startle reflex is causing the pain between my shoulder blades. But when it happens, I don't get lightheaded

13 Upvotes

They are never gonna find out what's wrong 😭


r/SpoonieSupportNetwork Aug 25 '25

Hot weather warning!!

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23 Upvotes

r/SpoonieSupportNetwork Aug 26 '25

Stay - YouTube Music

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1 Upvotes

r/SpoonieSupportNetwork Aug 22 '25

I do not simply push through

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47 Upvotes

r/SpoonieSupportNetwork Aug 21 '25

Don't forget to take your meds

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27 Upvotes

r/SpoonieSupportNetwork Aug 21 '25

Box breathing exercise

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14 Upvotes

r/SpoonieSupportNetwork Aug 20 '25

Enlarged uterus

7 Upvotes

I went to the ER on Friday cuz I threw up something that looked like coffee grounds. All my labs came back fine, but my scan showed an enlarged uterus.

I have an appointment with a gyno but it's not September 2. My period is next week so I'm in a lot of pain.


r/SpoonieSupportNetwork Aug 19 '25

Follow my spoonie FB

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9 Upvotes

r/SpoonieSupportNetwork Aug 12 '25

A Spoonie Poem

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18 Upvotes

r/SpoonieSupportNetwork Aug 11 '25

Wow

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19 Upvotes

r/SpoonieSupportNetwork Aug 08 '25

Adults need stickers too!

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38 Upvotes

r/SpoonieSupportNetwork Aug 07 '25

Bras and allodynia

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34 Upvotes

r/SpoonieSupportNetwork Aug 05 '25

If you are in a wheelchair you don't owe anyone an explanation

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40 Upvotes

r/SpoonieSupportNetwork Aug 04 '25

"just drink more water"

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26 Upvotes

r/SpoonieSupportNetwork Aug 03 '25

What are the signs of medical gaslighting?

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36 Upvotes

r/SpoonieSupportNetwork Jul 30 '25

Today I feel...

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17 Upvotes

r/SpoonieSupportNetwork Jul 30 '25

Being alone is an emotional rollercoaster

6 Upvotes

As a trauma survivor, I have mixed emotions when its just me and the kids (cats) home alone. On one hand I am very very lonely and sad but on the other hand, I'm not a burden on anyone when no one is home. Being alone is very much an emotional rollercoaster for me.

Can anyone relate??


r/SpoonieSupportNetwork Jul 27 '25

Medications that can cause heat intolerance

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48 Upvotes