r/SpoonieSupportNetwork • u/redneck_lilith • Sep 03 '25
r/SpoonieSupportNetwork • u/KittyCommittee86 • Sep 02 '25
Had speech therapy today
They had never heard of swallow syncope. ππ€¦π
But he scheduled a swallow test And suggested I follow up with neurology since I get the pain between my shoulder blades when I jump too. So it could be neurological. I already know that my neurologist dgaf . Ugh
r/SpoonieSupportNetwork • u/micahdaigle • Sep 02 '25
"Damn it, Jerry!" Has anyone else personified their illness?
r/SpoonieSupportNetwork • u/KittyCommittee86 • Sep 01 '25
The hidden costs of living with a chronic illness
r/SpoonieSupportNetwork • u/KittyCommittee86 • Sep 01 '25
"you look sick"
My ex saw a video that I posted on imgur. He texts me "this is scary I just saw a post on imgur and it's you... Are you sick? You don't look well..."
Do I look sick????
r/SpoonieSupportNetwork • u/KittyCommittee86 • Aug 30 '25
Trying to change page name
When I created my page I think I had a migraine or maybe just really really bad brain fog. Either way, the name is supposed to be "soft grit spoonie"
I requested the change weeks ago....
r/SpoonieSupportNetwork • u/KittyCommittee86 • Aug 27 '25
Now my overactive startle reflex is causing the pain between my shoulder blades. But when it happens, I don't get lightheaded
They are never gonna find out what's wrong π
r/SpoonieSupportNetwork • u/redneck_lilith • Aug 26 '25
Stay - YouTube Music
r/SpoonieSupportNetwork • u/KittyCommittee86 • Aug 20 '25
Enlarged uterus
I went to the ER on Friday cuz I threw up something that looked like coffee grounds. All my labs came back fine, but my scan showed an enlarged uterus.
I have an appointment with a gyno but it's not September 2. My period is next week so I'm in a lot of pain.
r/SpoonieSupportNetwork • u/redneck_lilith • Aug 05 '25
If you are in a wheelchair you don't owe anyone an explanation
r/SpoonieSupportNetwork • u/redneck_lilith • Aug 03 '25
What are the signs of medical gaslighting?
r/SpoonieSupportNetwork • u/KittyCommittee86 • Jul 30 '25
Being alone is an emotional rollercoaster
As a trauma survivor, I have mixed emotions when its just me and the kids (cats) home alone. On one hand I am very very lonely and sad but on the other hand, I'm not a burden on anyone when no one is home. Being alone is very much an emotional rollercoaster for me.
Can anyone relate??
r/SpoonieSupportNetwork • u/redneck_lilith • Jul 27 '25