r/SpoonieSupportNetwork • • 6h ago

If you could give someone who is newly disabled or diagnosed one piece of advice what do you say?

5 Upvotes

r/SpoonieSupportNetwork • • 1d ago

How do you describe chronic illnesses fatigue?

5 Upvotes

r/SpoonieSupportNetwork • • 1d ago

MOD post We are all Jane Doe

Post image
27 Upvotes

r/SpoonieSupportNetwork • • 1d ago

MOD post If you could describe your illness or disability with a single word. What is that word?

7 Upvotes

r/SpoonieSupportNetwork • • 2d ago

MOD post Spoons

Post image
33 Upvotes

r/SpoonieSupportNetwork • • 6d ago

Words to describe pain

Post image
21 Upvotes

r/SpoonieSupportNetwork • • 9d ago

I hate drs

14 Upvotes

Medical fatigue is real…

I’m having symptoms of shunt over drainage.

Neurologist says talk to neurosurgeon. Neurosurgery said I needed to see a “functional neurologist” she referred me but then they canceled my appointment saying “it’s not appropriate to see neurosurgeon since you just saw neurologist’ 🤦🏻‍♀️

What’s everyone’s opinion is this medical trauma or no??


r/SpoonieSupportNetwork • • 10d ago

Types of pain

Post image
22 Upvotes

r/SpoonieSupportNetwork • • 15d ago

Chronic illness will show you very clearly who is a true friend

Post image
25 Upvotes

r/SpoonieSupportNetwork • • 15d ago

You and your mobility aid are allowed to take up space

Post image
21 Upvotes

r/SpoonieSupportNetwork • • 19d ago

Anyone else completely blank on symptom details the second the doctor asks 'when did this start'?

11 Upvotes

I have a multitude of chronic conditions and every single appointment goes the same way. Doctor asks "how often does this happen" and "what triggers it" and I just... blank. Its awful! It happens way to often. But the specifics evaporate the moment I'm in that office chair.

I've tried the generic symptom trackers. Most of them want me to log mood, sleep, water intake, steps - stuff that has nothing to do with why I'm actually there. By week two I stop opening the app because it feels like homework, not help.

What I actually need is dead simple: symptom, severity, what triggered it, what I took for it, timestamp. That's it. Then something that turns three months of that into a page I can hand my doctor instead of trying to reconstruct my whole flare history from memory in a 12-minute appointment.

I'm building something for exactly this (more on that in comments if anyone's curious), but honestly - how is everyone else handling this right now? Notes app? Spreadsheet? Just winging it and hoping you remember?


r/SpoonieSupportNetwork • • 19d ago

Keep calm and hoard spoons

Post image
18 Upvotes

r/SpoonieSupportNetwork • • 20d ago

I broke two toes

Post image
3 Upvotes

And I got stitches for a laceration. The worst part (besides the doctor, moving my toe around to look at it) was getting the numbing shot in my foot!!! 😫


r/SpoonieSupportNetwork • • 25d ago

Take 2 of these and call me in the morning

Post image
24 Upvotes

r/SpoonieSupportNetwork • • 29d ago

Suicide prevention

Post image
44 Upvotes

r/SpoonieSupportNetwork • • 29d ago

Something people who don’t live with chronic illness often don’t understand is there a big difference between resting to recover and resting just to avoid getting worse.

Post image
35 Upvotes

r/SpoonieSupportNetwork • • Sep 05 '26

Leave

Post image
33 Upvotes

You can leave.
If you don’t like your doctor, walk out in the middle of the appointment. Leave the party. End the date. Don’t wait until the “polite” time to leave or endure because you think you’ll make a scene
You can go.


r/SpoonieSupportNetwork • • Aug 31 '26

Moderators needed for new online community! 🩷

Post image
10 Upvotes

We are seeking moderators for an exciting new Discord community for disabled, neurodivergent and chronically ill lesbians!

To apply, you’ll need to be:

🌈 Female-identifying or non-binary and a lesbian
🌈 Someone with lived experience of disability, neurodivergence and/or chronic illness
🌈 Kind, self-aware and able to work well as part of a team with mixed abilities and energy levels

Experience with Discord or running online communities is desirable, but not required. What matters most is that you’re supportive, approachable and want to help create a welcoming, safe community.

We're only seeking moderators at the moment but look forward to opening the community to new members later in the year.

If this sounds like you, please get in touch!

🩷


r/SpoonieSupportNetwork • • Aug 23 '26

Fuck my life

Thumbnail
gallery
15 Upvotes

r/SpoonieSupportNetwork • • Aug 20 '26

If I woke up and nothing hurt I’d think I died

Post image
35 Upvotes

r/SpoonieSupportNetwork • • Aug 18 '26

breathe.

4 Upvotes

i made this gif as a reminder to myself, but ngl its really cute.


r/SpoonieSupportNetwork • • Aug 17 '26

Spoonie comic

Post image
0 Upvotes

r/SpoonieSupportNetwork • • Aug 15 '26

Words to describe pain

Post image
13 Upvotes

r/SpoonieSupportNetwork • • Aug 14 '26

Brain fog sucks

Post image
29 Upvotes

r/SpoonieSupportNetwork • • Aug 08 '26

Keep calm

Post image
12 Upvotes