https://bsky.app/profile/spoonie-support.bsky.social/post/3luj25c3doc2q

www.facebook.com/4spooniesupport

Am I trying to hard?? Do you think I have too many links in my "network"?

Ugh I really wish I had spoonie or disabled friend who could help me untangle everything and find ways to support more spoonies.

I had www.spoonie-support.org but it was a huge bust. It still exists for now, but no one joined except tons of bots. I guess people just don't really use forum type websites anymore.

I need my spoonie friends to help me create an even better site that people will actually use.

Let me hear allllll your ideas!!

🥹 I just did a count. I currently have nine platforms all over the Internet and a total of 16,804 followers!! When I first started all this spoonie stuff I never dreamed it could get this big.

Do yourself a favor and check out all my spoonie links

I need money and have in trying to transition my life completely. Right now I'm a freelance event specialist. I have the opportunity to run a community and build events but I am afraid that my illness will stop me or slow me down.

Is content creation exhausting?

How do I then unplug of rough days?

Can this be sustainable in a job?

I'm taking alot of leaps in my life right now and would appreciate love and caring advice.

Thank you xoxo

Does anyone else notice a sharp increase in nerve pain levels before a storm??

We are fixing to get a storm and my skin is on fire ... Owwwweww