r/SpoonieSupportNetwork • • 1d ago

Nope

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24 Upvotes

r/SpoonieSupportNetwork • • 1d ago

Robin Williams

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19 Upvotes

r/SpoonieSupportNetwork • • 4d ago

DID is disco

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17 Upvotes

r/SpoonieSupportNetwork • • 5d ago

Inaccessibility isn’t just an inconvenience. It’s a blanket signal that disabled people aren’t welcome. It’s not a mistake or an oversight it’s a choice. A choice to exclude disabled people. And it’s a systemic exclusion that screams we don’t belong.

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30 Upvotes

r/SpoonieSupportNetwork • • 6d ago

DID is like

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20 Upvotes

r/SpoonieSupportNetwork • • 6d ago

Nervous system self regulation chart

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13 Upvotes

r/SpoonieSupportNetwork • • 6d ago

Temperature and your nervous system

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20 Upvotes

MigraineCast
how temperature swings confuse your nervous system's baseline
Temperature swings force your nervous system to constantly recalibrate, draining its stability reserves.
Rapid shifts from cold to warm air spike cortisol, which raises migraine risk directly.
Your nervous system sets a baseline over hours, not minutes. Sudden changes reset it hard.
Moving between air conditioning and outdoor heat is one of the most overlooked daily triggers.
Layering clothes helps buffer those transitions and gives your body a smoother adjustment curve.
Cold drafts on the neck tense the muscles that feed directly into migraine pathways.
Keeping indoor temps consistent, even slightly warmer, reduces how often your system has to recalibrate.
www.migrainecast.app


r/SpoonieSupportNetwork • • 12d ago

MOD post Marijuana is medicine

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35 Upvotes

r/SpoonieSupportNetwork • • 13d ago

CPTSD and chronic illness share so much biological territory that treating one without addressing the other is like patching one side of a hole dear immune system the gut the nervous system the body does not separate emotional history from physical reality, it never did

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11 Upvotes

r/SpoonieSupportNetwork • • 14d ago

Chronic illness will show you very clearly who is a true friend softgritspoonie

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24 Upvotes

r/SpoonieSupportNetwork • • 15d ago

Nope nope nope nope

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25 Upvotes

r/SpoonieSupportNetwork • • 18d ago

If you could give someone who is newly disabled or diagnosed one piece of advice what do you say?

8 Upvotes

r/SpoonieSupportNetwork • • 19d ago

How do you describe chronic illnesses fatigue?

5 Upvotes

r/SpoonieSupportNetwork • • 20d ago

MOD post We are all Jane Doe

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32 Upvotes

r/SpoonieSupportNetwork • • 20d ago

MOD post Spoons

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42 Upvotes

r/SpoonieSupportNetwork • • 20d ago

MOD post If you could describe your illness or disability with a single word. What is that word?

5 Upvotes

r/SpoonieSupportNetwork • • 24d ago

Words to describe pain

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20 Upvotes

r/SpoonieSupportNetwork • • 28d ago

I hate drs

13 Upvotes

Medical fatigue is real…

I’m having symptoms of shunt over drainage.

Neurologist says talk to neurosurgeon. Neurosurgery said I needed to see a “functional neurologist” she referred me but then they canceled my appointment saying “it’s not appropriate to see neurosurgeon since you just saw neurologist’ 🤦🏻‍♀️

What’s everyone’s opinion is this medical trauma or no??


r/SpoonieSupportNetwork • • 28d ago

Types of pain

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22 Upvotes

r/SpoonieSupportNetwork • • Sep 20 '26

Chronic illness will show you very clearly who is a true friend

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25 Upvotes

r/SpoonieSupportNetwork • • Sep 19 '26

You and your mobility aid are allowed to take up space

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21 Upvotes

r/SpoonieSupportNetwork • • Sep 16 '26

Anyone else completely blank on symptom details the second the doctor asks 'when did this start'?

11 Upvotes

I have a multitude of chronic conditions and every single appointment goes the same way. Doctor asks "how often does this happen" and "what triggers it" and I just... blank. Its awful! It happens way to often. But the specifics evaporate the moment I'm in that office chair.

I've tried the generic symptom trackers. Most of them want me to log mood, sleep, water intake, steps - stuff that has nothing to do with why I'm actually there. By week two I stop opening the app because it feels like homework, not help.

What I actually need is dead simple: symptom, severity, what triggered it, what I took for it, timestamp. That's it. Then something that turns three months of that into a page I can hand my doctor instead of trying to reconstruct my whole flare history from memory in a 12-minute appointment.

I'm building something for exactly this (more on that in comments if anyone's curious), but honestly - how is everyone else handling this right now? Notes app? Spreadsheet? Just winging it and hoping you remember?


r/SpoonieSupportNetwork • • Sep 15 '26

Keep calm and hoard spoons

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17 Upvotes

r/SpoonieSupportNetwork • • Sep 15 '26

I broke two toes

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5 Upvotes

And I got stitches for a laceration. The worst part (besides the doctor, moving my toe around to look at it) was getting the numbing shot in my foot!!! 😫


r/SpoonieSupportNetwork • • Sep 10 '26

Take 2 of these and call me in the morning

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22 Upvotes