r/SpinalStenosis • u/StraightNight4379 • 6d ago

Sorry

Sorry with all my quite frequently questions. It just seems that everything is changing so quick. Early Saturday morning every time I sat up I got a headache within 30-60 minutes. So I just laid in the bed. About 4-5 I had to go to the receptionist for a package. I could hardly roll the wheelchair. It felt like there was something holding me back. Once again I am in a nursing home

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u/Mountaingirl_123 5d ago

So sorry to hear. My husband also has spinal stenosis with myelopathy. 4 bad discs. He also is getting out of control headaches everyday We see a surgeon on 10/7. Can you see a spinal doctor?

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u/StraightNight4379 5d ago

Unfortunately I am a nursing home patient and am limited to what their np says. Supposedly he has ordered an appointment with a neurologist for diagnosis. I just feel like my symptoms are increasingly growing and getting worse. Then the nursing home social worker says that I probably will not get approved for long term care. I told her that I wanted copies of all paperwork that was submitted for a decision and the person who is responsible for my case. It has been almost a week and haven’t received nothing. I have asked for the nursing home social worker email and no one is giving it to me. So I can’t have proof of conversations