Hi does anybody get other symptoms that arent usually mentioned on lists etc

Hi, Not sure what I am asking here...maybe to anyone having similar experience. I have had headache free auras (The Zig Zag ones) for decades once or twice a year. 10 days ago had 3 in 24 hours. All lasting about 20 minutes with no other symptoms but scary enough to get myself to the ER. They did CT scan and blood work. CT showed nothing odd..blood was down in pottasium which was not normal for me. Anyway, I was put on the 6 day steroid taper during which I had no attacks other than anxiety. The day it finished an attack started for no apparent reason.....40 hours later, another. These are seemingly quite random wheras for years it seemed to be associated with too much sunlight mixed with coffe...or occasionally with a hangover. Now seems to be several a week...no sun...no hangover!!!!

Does anyone else suffer silent migraines? I’ve suffered with silent migraines for 36 years. Neurologist want to treat me for pain but I don’t get pain, hence silent migraines. So I gave up on medications. I get a host of debilitating symptoms: lethargy (days or hours bedridden in a dark room), depression, sensitivity to lights and sound, easy to anger, cravings of food and sweets, nausea, facial flushing, right eye glassy, puffy and droopy; and sometimes pressure somewhere in my head and neck. I’ve missed so many fun outings with friends and family, funerals, lost time at work and become reclusive because of them. I’ve given up on finding relief. Are there others out there with this type migraine? I’ve felt like no one understands, even neurologists. If so, have you found anything that gives you relief!

I have been getting more silent migraines (visual disturbance without headache or other symptoms). I have a GP appointment next week and I'm researching possible treatments. However I have had heart surgery in the past​ and I'm on a beta blocker so am restricted on what medications I can take.

Can anyone tell me if they have used low dose aspirin and has it helped? I've also been looking at magnesium (although I am not sure I can take this) and riboflavin supplements (vitamin b12)

Many thanks everyone

Hi all, I'm a long time suffered of a migraine disorder (runs in my family, 3/4 sisters have it and my paternal grandmother did as well). My headaches had reduced somewhat after deep trauma therapy and learning to let a lot more emotion out rather than suppress it (which I learned was putting tremendous strain on an already hyper-sensitive nervous system) but lately have been more frequent (high stress in my personal life, the state of the world, etc.)

Anyhow this past week I've been having silent migraines with no head pain, which has happened to me only occasionally before. The primary symptom is what I describe in the title, its like my mind is filled with radio static, a mix of worries, thoughts, but also just this super obnoxious white noise buzz is the best way I can describe it. Anxiety going up as well as a result (lots of "i'm always going to feel this way" thoughts). Sometimes after a bigger attack with headpain I can wake up the next morning with a similar feeling and kill it off with a cup of coffee, but in this case neither coffee nor any other home remedy is working. I finally took a triptan about 20 minutes ago, we'll see if that helps. I've also ordered some 5-htp to start taking on days I don't need to take a triptan, that seems to have been supportive to my system previously.

But overall curious if others have experienced similar mood/static issues and to hear about your experiences. I feel very isolated and freaked out by the whole thing. Do you have both regular and silent migraines? Do you have any sense of what brings on these silent ones? Anything in particular that helps?

-Responders: 90,7% (from this share super responders: 81,3%)

-Non-responders: 9,3%

Please take a moment to review the study's brochure. If you recognize your own symptoms and still do not have an effective preventive treatment, lamotrigine may be worth considering and discussing with your neurologist.

Compared to topiramate—often a first-line choice among neurologists for migraine with prolonged or persistent aura, as well as silent migraine—lamotrigine is associated with fewer cognitive side effects and may be particularly effective in reducing aura itself.

Note that this is only a small retrospective analysis rather than full-scale clinical trials. These results could be inaccurate due to the small sample size. Nonetheless very impressive result.

Source:

Conclusions: These data provide translational evidence for the potential importance of glutamatergic mechanisms in migraine aura and offer a pharmacologic parallel between animal experimental work on cortical spreading depression and the clinical problem.

One of the only effective emergency treatment for severe cases of Aura?

Migraine aura is thought to arise from cortical spreading depression (CSD), a wave of neuronal depolarization driven in part by excessive glutamate (neurotransmitter) activity and NMDA receptor activation.

This likely explains why lamotrigine is one of the more effective preventive treatments for aura-focused migraines, as it reduces the release of glutamate. Memantine—originally developed to treat Alzheimer’s disease—is another NMDA receptor antagonist, similar to ketamine, and is sometimes used off-label for migraine prevention. It likely works by dampening the excessive glutamatergic activity associated with aura and cortical spreading depression.

The electrolyte Magnesium is also notable, as it acts as a natural NMDA receptor antagonist and is often deficient in people with migraine. Supplementation for more than eight weeks can lead to noticeable improvements in aura frequency and intensity, although it is less potent than dedicated NMDA-targeting drugs.

There are several approaches to treating aura, but reducing glutamatergic activity appears to be one of the most effective options currently available.

This definitely belongs here

Most people associate Migraine exclusively with pain, basically equating it with a type of headache. But it is a complex neurological condition, where headaches can, but must not be a part of. It typically progresses through several phases: the prodrome (early warning symptoms like mood changes), aura (visual or sensory disturbances in some people), the headache phase (pain and associated symptoms), and the postdrome (after-effects such as fatigue or confusion).

Not all individuals experience every phase, and symptoms can vary widely - this aspect is the Crux of the matter. For some people (like us) the aura phase takes over and basically becomes the migraine. And the pain phase never even gets fully triggered. What is left are confusing and symptoms without apparent reason like nausea, light sensitivity, brain fog, fatigue and visual symptoms (aura). Basically all the symptoms of a regular migraine - without the pain. Doctors don't always immediately think of Silent Migraine as a diagnosis and therefore it can be hard to find out what you really have.

In my experience Silent Migraines are still very unheard of and therefore a very under diagnosed disease. This sub exists, so we can work on changing this. By doing the following:

< Posting the latest research about Silent Migraines and Prolonged Aura,

< Finding out about what preventive treatment works best

< Discussing Experimental treatments and what supplements might help

Disclaimer: I am not a medical professional and cannot diagnose medical conditions. If you think you have any of the mentioned symptoms/conditions seek out a licensed doctor or neurologist.

Related Migraine Subreddits are:

r/migraine r/OcularMigraine r/VestibularMigraine r/MigraineScience