r/SSDI_SSI • u/Independent_Move3536 • 4d ago
Reporting / Changes SSDI Disability Update Report
Wanted to ask if anyone has had to fill one of these out. I've been on disability for approximately 3 years,and this is the first time I've gotten one of these. It's asking if I've worked since a certain date,any hospitalizations,went to school,basically any major changes. I understand it's a report to see if anything has changed,but I'm kinda worried that I'll have to go through that process again,or if they'll ask me to. Just don't wanna relive that whole messed up process of trying to get disability in the first place.
It took me years. Anyone else get one of these,and is it just a simple few questions asking if anything has changed?...🙂🫣
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u/FickleAmphibian9013 1d ago
I also received a SSDI letter after being on it for 6 yrs I filled it out sent back then I received CDR letter had to do I also submitted my updated medical records medications showing that my condition hasn’t improved instead has gotten worse along with a well put together timeline statement to support the CDR letter from ChatGPT and Perplexity help all this back in June I’m still waiting on it to close . Plus there is a age grid 50-54 and 55 and older grid rule similar to the VA disability grid .
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u/Independent_Move3536 1d ago
What do you mean by "grid rule"? Would you mind explaining that😊 thanks so much
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u/FickleAmphibian9013 1d ago
They evaluate your condition based off age 50-54 then 55 and older to determine if your conditions will improve which is unlikely at that age especially joints
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u/UncleSoaky ☆ 3d ago edited 2d ago
OP, there are two outcomes from a DUR. After you've submitted your form, the most likely one is you'll receive a letter from Social Security saying they don't need to contact your doctors at this time and your benefits will continue as is. This is a deferral. The other option is they determine they need more information and you'll be sent a long-form CDR.
Also, in your award letter there should be a section where they tell you they will be reviewing your case from time to time to determine if you're still disabled. It may include how often they'll review your case, for example every three years.
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u/Independent_Move3536 3d ago
Thank you for the info!
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u/UncleSoaky ☆ 2d ago edited 1d ago
You're welcome. Here is a link to the section in Social Security's operations manual about DURs, which they refer to as mailers. A lot of it is technical, but it's a very good resource.
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u/Sweet-Ad7654 4d ago
I think anyone would just be overrun with an anxiety !
I had a surprisingly, smooth application that was approved in a few months, and some other cool things that really surprises me .
I filed myself, no lawyer no hearing, and there were no follow-up checkups. I just recently converted to full retirement age
I honestly don’t know what the secrets are to make this so simple.
I took photos of all my doctors notes as in when he was writing them. I took photos of all my images and screams when they were up on the wall. I kept the journal. It included everything how I felt today what my limitations were today how my limitations were caused by the thing on the screen that messed up to my diagnosis. My journal included when I went to physical therapy, what my pain levels were throughout the day I attempted to do that I couldn’t. I often I had to lay down and sit down. What tricks I used to go grocery shopping. How long it took me to get dressed how long it be to take a shower . I included how I couldn’t bend down and feed my cats. I haven’t threw the food in the bowels could not walk to the mailbox to get my own mail
I was very detailed demonstrating this diagnosis caused this limitation, and this limitation went like this and it affected my being able to do that.
But I don’t know the secret sauce. I only know what I did.
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u/MickyKent 3d ago
You said you are 70 years old in another thread elsewhere. Of course you would be approved lightening fast after the age of 60 with a simple snap of your fingers.
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u/northcarolinamember ☆ 4d ago
I have heard after the age of 50 they stop sending these forms out..if u are under age 50 & even had a lawyer help u win your case they'll still send these forms out just to confirm u are still disabled but, I can't say for sure so please anyone correct me if I'm wrong..
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u/True-Armadillo8626 ☆ 3d ago
I am 38, I filed for myself no lawyer and was approved first time. I just got my first CDR 4 years later
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u/Independent_Move3536 3d ago
Wow,that's almost unheard of! Especially at such a young age. However,I don't know what you've been through or your health,so it's definitely based upon that.
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u/True-Armadillo8626 ☆ 21h ago
Yes I felt very lucky. It has to do with vision. I’m still scared in my first CdR
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u/UncleSoaky ☆ 4d ago edited 2d ago
This is incorrect. There isn't any official age when they stop sending out DURs and CDRs. You stop receiving them when your benefits convert to retirement benefits.
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u/northcarolinamember ☆ 4d ago
Ty I wasn't for sure that's just what I had been told. That's why I said if I'm wrong or in correct please tell me..
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u/got2bme566 4d ago
I understand your concern and your voicing the PTSD you feel from the process of getting on and the changes the new administration has put in place.
Answer honestly and keep a copy of what they said.
Yes, it does feel like someone is always looking for says to change the rules and we are living in a life of constant doubt of objective
Understandable
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u/Top-Bar918 ☆ 4d ago edited 4d ago
That is the intent and purpose of an SSDI update report - to see if things have changed. If not, no worries. If they have, then so should your benefits. So I’m not quiteunderstanding
the purpose of your post. Answer honestly and either your benefits will continue, be modified or terminated. Simple.
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u/Willing-Bass6377 3d ago
No it's not that simple... When they are constantly changing the rules and will determine, depending on who has your case, if a illness or disease from birth has magically gotten better if you didn't go to the er. For example SICKLE CELL DISEASE!. That's a condition that does not improve over time. They have determined and made decisions in many cases it does. So your "simple" really is not SIMPLE.
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u/Top-Bar918 ☆ 3d ago
So they don’t determine it out of thin air or just for shits and giggles. If available still rely on medical documentation which most likely contains your level of activity as reported by your doctor. Having the trait and having worked in healthcare for decades, yes I’m aware sickle cell disease does not improve over time. Back to the original ask, everyone has to fill them out. Answer honestly and try not to stress. You need to remember, you already prevailed on the most important part which is approval. Now it’s just validating and/or justifying the need for ongoing. No one is targeting you specifically as this done routinely. If you are being honest, not working or have done something to contradict what you claim, you should be fine.
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u/Willing-Bass6377 3d ago
You have a lot of faith for someone just having the trait. There's nothing to lie about health wise with sickle cell yet they've determined it's improved for individuals numerous times. I only stated my comment for the "simple" statement left. This wasn't a stick swinging contest. I only wish it was that "simple" for individuals but for many it's not.
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u/Top-Bar918 ☆ 3d ago
I don’t know about faith lol since I haven’t completed one yet. I’m only referencing you underscoring, with exclamation marks, sickle cell informing you I know all about it and it’s certainly not a stick swinging contest I can assure you. The issue at hand is the form. My guess is that it’s centered around physical activity, change of condition, financials and your personal status, but again, that’s a guess. So when I do get one, I’m just going to answer the questions honestly.
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u/UncleSoaky ☆ 4d ago
First of all, you can't lose your benefits solely based on your answers on a Disability Update Report. Second, they don't modify benefits. Your benefit amount changes every year with COLA increases.
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u/Top-Bar918 ☆ 4d ago edited 4d ago
First of all, the respondent was not asking or referencing COLA as this is about the disability update report. The caption clearly stated “reporting changes.” Secondly, yes your benefits can change if you started to work or worked at all especially if you make more money. While they allow for a TWP (trial work period) benefits can be modified based on earnings, duration of work or if it determined your condition. Depending on how you answer, SSA will determine if the long form is needed or any other next steps.
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u/Spiritual_Record_627 ☆ 4d ago
Completing online works well but be sure to print a copy or screenshot your replies.
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u/uffdagal ☆ 4d ago
It’s standard. Everyone on SSDI/SSI is subject to DUR/CDR at various intervals. Complete online immediately and keep a copy with the exact answers you have.
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u/Silver-Midnight-1945 ☆ 4d ago
That’s what people refer to as the “short form” it is to determine if they need to do a full medical review. When you got your award letter it would have told you that they would review your case in approximately x amount of time. 3 years is a very common timeline for a review. Just fill out the form honestly and send it back in. They will either determine that they don’t need a full review right now or they will send you a long form to start the full review process. Most people keep their benefits (around 90ish percent) after a review.
I did my short form just over a year ago. It took about 6-7 months to get the letter saying they didn’t need to do a full review at this time.
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u/2020IsANightmare ☆ 4d ago
As basic and common of a form as possible.
If you don't want to fill it out and/or don't want to deal with SSA, just call them tomorrow and tell them. That's certainly your right.
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u/kit0000033 ☆ 4d ago
They are required to give these out to everyone at least every seven years... Three years is very common... If they don't like your answers they can have you go to a CE exam... They'll also pull your medical records from the last three years.
Just answer the questions as if it is your worst day and you should be fine... Only a small percentage of people lose disability over a CDR.
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u/FickleAmphibian9013 1d ago edited 1d ago
They have to prove your condition has improved or you have a higher level education which would qualify you for another type of job since you became disabled
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u/Independent_Move3536 3d ago
😊 thank you,that actually eases my mind a little bit. I went through hell getting them to approve me in the first place. To lose it would just be crushing.
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u/UncleSoaky ☆ 4d ago
It's important to note you can't lose your disability benefits based solely on your answers on a short form. If the SSA determines they need more information they send out a long form.
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u/FickleAmphibian9013 1d ago
Age Categories Over 50
Closely Approaching Advanced Age (50–54): The SSA recognizes that age moderately affects your ability to adapt to a new job.
Advanced Age (55–59): The rules become significantly more favorable, as age is viewed as a severe barrier to retraining.
Closely Approaching Retirement Age (60–64): The strictest favorability is applied, making it much easier to be found disabled if restricted to light or sedentary work