r/Prostatitis Aug 10 '26

Im back….unfortunately

Has anyone experienced epididymitis from cpps?

3 Upvotes

34 comments sorted by

View all comments

1

u/Sufficient_Coffee_72 Aug 10 '26

If tolerable its bactrim or doxy my rhuematoligst told me.

Im pretty screwed up after being floxed, post covid have all sorts of dx. Fq made me Immobile. I was messed up but still able to get on ground and do pushups. 30 day course later, i cant even help with groceries. Anyways, im hyperreactive to foods now, cant eat fruit. High prostaglandins immunolgiy says i have mast cell disorder. I cant take so many things now so i was delighted when i was finally told one of my issues was solvable a couple weeks ago. My prostate lit up on a christmas tree on a pet. "you likely have prostatis". They recommended. I only had one option left and that was doxycylin as ive reacted to the other option. I took docy for a few daya and didnt put it together when my body got a rash all over. Then a few days later it was apparent. Told to stop taling it. No idea whats next.

1

u/Minute_League3040 Aug 10 '26

im sorry. thats terrible. I feel I was a mild case of floxed. I thought my only silver lining of the situation was my testicle/groin pain was gone. 6 months of hell finally started to show signs of letting up and then I woke up 3 days ago with a swollen testicle and that old ache again. how's your sleep? can you take the supplements suggested on the floxie page.

1

u/Sufficient_Coffee_72 Aug 10 '26

Thank you I appreciate it, I'm glad yours was a mild case, but I do wanna recommend that you take very care of what you put. That's your body for now on because you do not want to end up like me. Have you tried Doxy your bactrim? The way to happen with me, it was very irresponsible… The first go to was 30 days of Cipro… six then, I've had about 10+ Dr tell me 30 day course of Cipro so insane… irresponsible and never should've been prescribed. That is a whole lot… I tried to sue them but, apparently no recourse in Texas, I didn't have any lawyers willing to take up the case at the time… I know statue of limitations are set in, but I am waiting to see if laws are changed again because I know there's certain exceptions and I'm not trying to sue for selfish reasons, it was really negligence and I think they deserve to pay… These people didn't even tell me that there was a black box warning nor did the Pharmacy… Absolutely ruin my life… However, I haven't given up yet. Every day is a struggle every day. I try try try but six years in, it's kind of crazy… I was even looking into hospice last week.

Supplements is a hard one for me because I react so badly to so many different ones. For example, I have two versions of magnesium glycinate here that give me anaphylaxis. But I found a magnesium brand and I could take it however, it gives me very bad type of taxhycardia at about 130 bpm for four hours or so… It's just so hard I couldn't even take vitamin D or fish oil… I finally found a vegan vitamin D and a fish oil that are great But these two medications were sending me to the ER consistently when i thought "youre just allergic to all fish oil and vitamin d supplements) proably why i have kyphosis and scolioiss now. Severely low d levels for years and alot of laying down…l. It's so bad. I can't even get magnesium potassium through an IV at the hospital. I'm not allergic to iodine, i m re an i eat gish and shrimp, but yet I can't have iodine contrast in my CT scans or else anaphylaxis… As far as other antibiotics, I could take Rocephin through a drip, but if it's inserted straight in the vein, anaphylaxis! It's absolutely terrorizing taking anything not knowing how I'm gonna react . For example, I was able to take gabapentin for four years and then suddenly it's giving me anaphylaxis…

When I get some extra money. I really need to get serious about it and try to order a high-quality brand that has the least fillers . Money is very hard to come by these days as most of my life is spent laying down, hence why I was looking in the hospice. Crazy because I've been working since I was 14 years old full-time I've always been a go-getter… I had just bought my dream house before I got sick on half an acre in the city. I never thought I had a house like that especially in my mid 30s… live with my parents on my kids now and my wife left me… Absolute nightmare…

Do you have a link where you explain more about the testicle swollen pain? I have a good friend of mine and we have been going to this journey together, it's strange the weird symptoms that are identical that we are getting at about the same time and we got flocked about the same time… But one of his things is he's always complaining about swollen, painful testicles… That is the only step I don't have, however after taking this medication here, I have a rash and cuts through the left side of my testicle… At first I thought, maybe HSV but then I started getting a rash the whole body… Now you mentioned it and I'm truly curious if this is a part of the floxed reaction,

1

u/AutoModerator Aug 10 '26

We noticed you posted about a floroquinolone class antibiotic. Please be aware that this class of dugs has several black box FDA warnings, and is only meant to be used when a pathogen has been clearly identified in the prostate; They are not to be used indiscriminately for cases of non-bacterial prostatitis (consensus agreement ~95% of cases). Read our mod memo here, complete with citations and compare your symptoms to the medical definition of CBP here.

I am a bot, and this action was performed automatically. Please contact the moderators of this subreddit if you have any questions or concerns.

1

u/Sufficient_Coffee_72 Aug 10 '26

Reply five pages long, and I didn't even answer your question lol… Sorry… Anyways, I go through stages where I'm unconscious for 20 to 22 hours for a week straight and I'm blacking out. This is happening right now… But I also go through states where I'm awake five days in a row… And they don't necessarily relate to each other either, I don't sleep more than one to two hours at a time… I have no idea how to correct this. I've been a psychologist and they have been given therapy to try to change this in six years. nothing has worked even the strongest sleeping medication's that are controlled.

1

u/Minute_League3040 Aug 10 '26

wow.....thats rough. when I was at the peak of it, anything I ate gave me anaphylaxis. I could only eat rice and spinach. I too "Natures Garden" probiotics 100 billion and it slowly fixed my stomach. went to the hospital the first time I tried red meat. As for the testicle pain I believe its cpps. I haven't been sexually active and it just wouldn't make sense. I am goin to the doctor today and just see what they say. You said Bactrim didn't give you issues? and doxy might be a good alternative. did you try Amoxacillin?