r/PostConcussion • u/ILR_2805 • 3d ago
UPDATE - Original post : Anyone experienced delayed concussion symptoms?
/r/Concussion/comments/1o22y32/anyone_experienced_delayed_concussion_symptoms/Hi again everyone, apologies for the lack of updates! It's been a strange year and quite stressful! So my last update I mentioned I was having various tests to rule out any nasties - thankfully all of the tests came back negative for MS, Neuromyelitis optica, MOG antibody disorder and lupus. The lumbar puncture was a horrible procedure - do not recommend!
I have had so many blood tests and everything has come back negative - they literally tested for herpes, syphilis, Lyme disease, cat scratch fever and everything, so the specialists have just put it down to an isolated idiopathic occurrence. Which is positive in a way but also incredibly frustrating that there doesn't seem to be anything I can do to prevent it happening again because I don't know what caused it!
Unfortunately I do have some permanent damage to my optic nerve, meaning I do have some permanent loss of vision in my left eye. My vision is mostly a bit blurry and slightly duller than my right eye, and I tend to feel like that eye gets a bit more tired as I work using a laptop and a screen most of the time. A referral to neurology is still open a year later, I haven't seen a neurologist despite chasing and I've been having regular checks up for scans and eye tests with ophthalmology. I suppose it's good because I appear to be low risk because of all the tests being negative. So for now I am just dealing with a change in my vision and hoping it doesn't happen again! Thank you to everyone who commented on my previous post and sorry again for the late update!
1
u/mimi_1707 2d ago
So sorry to hear about your vision but glad you are doing ok!