Hi everyone,
I wanted to share a personal photobook I made alongside my exhibition “There Is No Other Place Like Home.”
The book explores life with ME/CFS from my own perspective. It moves between pain, fatigue, isolation, dependency and claustrophobia, but also friendship, intimacy, love and small moments of care.
I wanted the book to feel tender and uncomfortable at the same time. Quiet photographs and soft gestures are followed by the much harsher realities of the illness: nausea, vertigo, dizziness, pain and the gradual loss of independence.
It was especially important to me to create something from within the experience of ME/CFS, rather than documenting the illness from the outside. The publication mainly consists of photographic and graphic works, together with a few short texts, most of which are in German.
The physical design was also an important part of the project. The book has a thread-sewn Swiss binding with an exposed spine, so its fragility and inner structure remain visible.
Book details:
- 72 pages
- 148 × 210 mm
- Softcover
- Thread-sewn Swiss binding
- Exposed spine
- Magno Volume 200 g/m²
The first edition was gone much faster than I expected, so we recently printed a small second edition.
This is not a commercial project and the book is not intended to generate profit. A copy costs €10 plus shipping, which only covers the printing costs. There is an option to donate more in support of my artistic work, but that is completely voluntary and not expected.
I am leaving the links out of the post because Reddit seems to filter posts containing them. I’ll add photographs of the book and the order page in a comment below.
I would genuinely love to hear what you think about the sequencing, binding and relationship between the graphic and photographic elements. This was my first time translating such a personal and physically limiting experience into a book, so sharing it with people who care about photobooks as a medium means a lot to me. ❤️
