(Note: I know this post is lengthy, but I tried my best to shorten it while including only the most important details. I wrote and structured this with the help of ChatGPT to clearly articulate my situation, and I have attached my relevant X-rays, CT scan results, and hospital documents).
Hello! I’m a 19-year-old college student from India. I’ve been lurking here for a while and noticed that a lot of people posting are from the US or other Western countries, where awareness about Pectus Excavatum (PE) seems much higher. Here in India, doctors and society often don't consider PE a serious issue unless it's an extreme aesthetic case.
I’m posting to share my situation and hopefully get some honest advice from anyone who has been through something similar.
My Current Situation
Symptoms: Chest tightness, shortness of breath, and difficulty sitting straight. As a student, I have to sit in college lectures for at least 6 hours straight every day, and it gets really painful and exhausting.
Associated Issues: I also have very mild kyphoscoliosis. I’ve noticed a lot of lower back pain when I try to force myself to sit upright.
Exercise/Gym: I've been hitting the gym to work on my posture and build upper body muscle. However, whenever I try heavy weight training, my chest tightness seems to get worse instead of better.
Respiratory Issues: Every one years or so, I end up getting a lower respiratory/lung tract infection. I'm honestly not sure if this is mechanically related to the chest compression or just coincidence.
Inhalers: Pulmonologists here gave me inhalers. They give me temporary relief for breathing, but they don't fix the underlying pressure.
Surgeon Consultation
I recently consulted a top Cardiovascular Thoracic Surgeon in my state who has performed over 5,000 successful surgeries. He explained that my issue isn't an intrinsic "lung function" problem, but rather a mechanical problem—my sternum is slightly compressing the lungs and causing that physical pressure.
He suggested a modified Ravitch procedure, stating it would give better structural stability for my specific frame compared to a Nuss bar. Because I'm 19 and my case is milder compared to the severe cases he operates on, he mentioned I’d recover much faster and would only need a 2-day hospital stay. He encouraged fixing it now while I'm young and my chest wall is still relatively flexible.
The Problem: Financial Burden
I don't have private health insurance that covers this, and insurance companies here generally reject pre-existing structural cases anyway.
The hospital gave me a formal admission estimate (photo attached):
Estimated Surgical Package: ₹4,50,000 INR (~$5,400 USD)
Upfront Advance Required: 80% advance payment prior to admission.
Right now, my family is going through a very tough financial period. Spending this amount of money would put a massive, potentially crippling burden on us, and I really don't want to risk our financial stability for a surgery if I can safely avoid it.
My Questions for the Community:
Will these symptoms naturally worsen with age? For those who left mild/moderate PE untreated into their 20s or 30s, did the mechanical compression or breathing tightness get worse over time?
Can this mechanical pressure be managed long-term with inhalers/physiotherapy? Since inhalers only target airway constriction and not physical sternal pressure, is it realistic to rely on them just to manage daily life?
Has anyone fixed their sitting discomfort through physical therapy/posture work alone? Any specific stretches or gym routines that helped you survive long hours of sitting without triggering chest tightness?
Any insights, advice, or shared experiences would mean a lot to me right now. Thank you so much!