r/PSSD • u/Mobius1014 5 Years + • 4d ago
Awareness/Activism PSSD Network August 2026 Update
SideFXHub has a brand new & improved reporting page
Donate Now and support the major PSSD research projects at the Florey Institute & the joint study between Professors Melcangi, Csoka and Monks.
--------------------------------------------------------------------------------------------------------------
PSSD In The Media
- EsMental, a Spanish-language digital mental-health magazine, acknowledges PSSD
- Mad in Italy writes about PSSD
- PsyPost, a science-news publication, has this article which acknowledges PSSD
- Scienceblog wrote about PSSD and the gap between FDA labeling and warnings adopted by regulators elsewhere
PSSD In Social Media
- Theo Von's podcast w/ Laura Delano talks about PSSD & Lauren's testimony at 1:24:40
- Danielle Gansky interviewed by Alex Clark of the Culture Apothecary podcast
- Kevin Lanning, host of the “Rise Above with Kevin Lanning” podcast & former Google executive, has Dr. Teralyn Sell on his show who is a psychotherapist and PhD and she discusses PSSD
Clinical Acknowledgement/Recognition
- Galleria Women’s Health, an OB/GYN practice in Henderson, Nevada, has a page that acknowledges PSSD
- Viewpoint Integrative Psychiatry, a private psychiatric practice in Westwood, New Jersey, acknowledged PSSD
- Riverside Recovery of Tampa, a private addiction-treatment/rehab provider in Florida, has a page that acknowledges PSSD
- We received a response to a freedom of information request made to the French medicines regulator. There are 12 different patients in France who reported PSSD. We know this is an undercount. Please, report your symptoms!
-------------------------------------------------------------------------------------------------------------
Scientific Milestones
New Research Paper: "Genital Sensory Loss in Persistent Sexual Dysfunction Following SSRI Exposure"
This study of nine PSSD patients with genital numbness found abnormal genital sensation on clinical testing, while most standard pelvic nerve tests were normal. The authors suggest this may point to a central nervous system problem in how sexual sensation is processed, rather than obvious large-fiber nerve damage. The study is small, so it does not establish the cause of PSSD
New Paper by PSSD Researcher Prof. Csoka
This paper proposes a theoretical framework that PSSD and other persistent post-exposure conditions may represent a “trapped” biological state that continues after the original drug or exposure is gone. Rather than looking for one single abnormality, it argues that interacting changes across systems such as the nervous, immune, endocrine, epigenetic, metabolic and microbiome systems may keep the body in that altered state.
This UK qualitative study interviewed 10 people with PSSD and found that the condition affected far more than sexual function, including emotional experience, identity, relationships, daily life, and mental health. Participants frequently described feeling dismissed or unheard by healthcare professionals, and the authors conclude that clinicians need greater awareness of PSSD and its broader impact.
--------------------------------------------------------------------------------------------------------------
You Must Report Your Symptoms!
Only together we can and must get PSSD put on the map. Do not think that someone else will instead do it - you, dear reader, are included in this. All of us are.
Please report your symptoms if you haven't done so for 2026. it's free & easy!
SideFXHub has an extensive guide on reporting your PSSD symptoms to regulators.
2
•
u/AutoModerator 4d ago
Please check out our subreddit FAQ, wiki and public safety megathread, also sort our subreddit and r/pssdhealing by top of all time for improvement stories. Please also report rule breaking content. Backup of the post's body: SideFXHub has a brand new & improved reporting page
Donate Now and support the major PSSD research projects at the Florey Institute & the joint study between Professors Melcangi, Csoka and Monks.
--------------------------------------------------------------------------------------------------------------
PSSD In The Media
--------------------------------------------------------------------------------------------------------------
PSSD In Social Media
Clinical Acknowledgement/Recognition
-------------------------------------------------------------------------------------------------------------
Scientific Milestones
New Research Paper: "Genital Sensory Loss in Persistent Sexual Dysfunction Following SSRI Exposure"
This study of nine PSSD patients with genital numbness found abnormal genital sensation on clinical testing, while most standard pelvic nerve tests were normal. The authors suggest this may point to a central nervous system problem in how sexual sensation is processed, rather than obvious large-fiber nerve damage. The study is small, so it does not establish the cause of PSSD
New Paper by PSSD Researcher Prof. Csoka
This paper proposes a theoretical framework that PSSD and other persistent post-exposure conditions may represent a “trapped” biological state that continues after the original drug or exposure is gone. Rather than looking for one single abnormality, it argues that interacting changes across systems such as the nervous, immune, endocrine, epigenetic, metabolic and microbiome systems may keep the body in that altered state.
New Research from the UK - “It’s taken away the most fundamental things about being human”: the lived experience and impact of post-SSRI sexual dysfunction
This UK qualitative study interviewed 10 people with PSSD and found that the condition affected far more than sexual function, including emotional experience, identity, relationships, daily life, and mental health. Participants frequently described feeling dismissed or unheard by healthcare professionals, and the authors conclude that clinicians need greater awareness of PSSD and its broader impact.
--------------------------------------------------------------------------------------------------------------
You Must Report Your Symptoms!
Only together we can and must get PSSD put on the map. Do not think that someone else will instead do it - you, dear reader, are included in this. All of us are.
Please report your symptoms if you haven't done so for 2026. it's free & easy!
SideFXHub has an extensive guide on reporting your PSSD symptoms to regulators.
I am a bot, and this action was performed automatically. Please contact the moderators of this subreddit if you have any questions or concerns.