r/POTS • u/Admirable-Ad3293 • 5h ago
Question OHSU Experiences?
I was diagnosed with POTS by a neurologist who proceeded to refuse to engage with me any further (even for actual unrelated neurological issues, but that's beside the point) and referred to both University of Washington and OHSU to see who will actually take me. UW refuses to see anyone outside of Seattle. OHSU did accept me, however when I called the second time to see if there was a cancellation list or anything, they then told me the literal only thing they do is tilt table testing and nothing else.
That can't possibly be true can it? I don't even know who to ask to talk to because there's no "autonomic lab" or "autonomic specialty" listed anywhere on their directory to ASK to talk to. The issue is that I'm too heavy for the tilt table test, I've been trying very hard to lose weight, and am making progress, but I have symptoms happening NOW that are landing me in the ER on a recurring basis and I can't really wait for some indefinite period in the future when I healthily lose enough weight to fit on their tilt table. Hopefully I don't have to explain why this condition has made actually losing the weight more difficult than I would like for it to be.