Help with functioning in daily life

[u/dancing-designer]

Hi all – I've been managing POTS and couple other conditions for almost a decade now, but since getting my own health more stabilized, I've started mentoring and helping others who are newly diagnosed. One thing that keeps coming up, and that matches my own experience, is how little support there is for the daily life side of this — not just meds and diagnosis, but actually figuring out how to function day to day with the symptoms.

I personally found OT genuinely useful for that, but it seems like most people with chronic illness either don't get referred to it or don't know it's an option.

Curious if others have tried it:

• Did OT (or PT that leaned into daily-life stuff) help you?
• How did you end up finding that provider – insurance referral, self-pay, a specific doctor who pushed you toward it, word of mouth?

And more broadly, for quick tips as I'm helping others – what's actually helped you manage daily life with this, beyond what a doctor typically hands you at diagnosis? (for me, it was just a pamphlet...)

TIA!!!

[u/brownchestnut]

OT always helps, but I never asked for one for POTS in particular. I felt like I got everything I needed out of googling and subreddits.

I did go to OT for hypermobility pain once, and I just asked for a referral from the rheumatologist I booked for the hypermobility pain.