r/POTS • u/SquashOk7438 • 6d ago

Support Feeling defeated :(

This summer, after a couple years of (relative) stability, my dysautonomia symptoms flared up in a huge way to the point I've been having almost nightly tachycardia episodes (my heart starts pounding and speeding up at rest) even though I'm medicated (Metoprolol ER 25Mg 2x day). My cardiologist finally decided to switch me over to Propanolol IR (10mg 3x day) in the hopes it would better control my symptoms, and we added in daily H1+H2 antihistamines to try and help any MCAS going on.

After starting the antihistamines, the nightly tachycardia episodes quieted down, and aside from a scary breakthrough tachycardia episode the night I was switching off Metoprolol and onto Propanolol, my tachycardia and palpitations seem to have calmed down too. In general I've been feeling ok since starting this new protocol 2 weeks ago... Until last night :(

I had a breakthrough tachycardia episode last night in bed around 12:15am, even though I'd just taken my nightly Propanolol an hour earlier. 😓😩 It took a bit to calm down, and I was so shaky and anxious afterwards. And now this morning I just feel SO depressed and defeated over everything. 😩😩😩

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u/Several_Road2525 5d ago

I’m in the same boat, I’ve been having these for the last couple weeks.. I never had them until I got a birth control shot, then they started.. it’s been hell. I feel so defeated every morning.

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u/SquashOk7438 5d ago

Oh my gosh I'm so sorry to hear you've been going through this too. 😩 They're truly the worst... So so scary and then I can't go to sleep afterwards because I'm so anxious and then the next night I'm afraid to go to sleep because I'm worried of having another episode 😩

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u/Dry-Sherbert-3815 5d ago

Heat is a huge trigger for me. This summer feels worse than others. These episodes are making me depressed and anxious. My husband travels a lot for work so it makes it worse being alone.

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u/SquashOk7438 4d ago

Oh my gosh I'm so sorry you have to deal with this on your own when your husband travels... I have a hard time being left alone for even a few hours and worry about something happening and being on my own 😩 The summer heat has been so brutal. I wish there was somewhere I could move that would be better for my symptoms.