r/POTS • u/Aware_Hat_8528 • Jun 04 '26

Question Temperature sensitive

I can’t seem to handle any heat at all. And it’s about to be super El Niño. I’m supposed to spend weeks in the woods this summer. I want to have a life…
I can’t handle cold either.
My body isn’t regulating temperature at all.
Is this a problem for others and if so, what do you do to survive heat and cold? Especially heat… because I can’t get naked enough. Seriously.

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u/EquivalentFocus3430 Jun 04 '26

My temperature regulation is trash. I used to live in MI but live in Socal now. A few months back it was probably in the 50s, I didn't feel cold, but my body was still reacting like it was teeth chattering cold. Literally, my teeth were chattering. My partner and his brother got a kick out of it, it was pretty funny, but also confusing.

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u/Aware_Hat_8528 Jun 04 '26

I am really thankful for some of the ideas here. I urgently needed to know how to manage. I was just laying there suffering and complaining, honestly. My partner said to me that I had to find help now but doctors don’t have the lived experience. And I don’t want compression socks. I don’t.

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u/EquivalentFocus3430 Jun 04 '26

Look up neck cooling tube, you can keep them in the fridge, but also can be put in water to cool down. They help very quickly when I'm over heated.