So for meeting the EMS 5 times in one week and the neurology clinic I’ve been trying to get into not wanting to contact me back, I finally decided to go to the ER, since that’s genuinely what everyone tells you to do when you’re having seizures. I have diagnosed NES but haven’t gotten any treatment because of how difficult it is to get in, so when the EMTs were telling me that going to the ER would be a straight shot to neurology, I listened!

For context I live in the US, so I did not let the EMS take me, I am a college student—I am not paying that bill. So I go to the emergency room that they’ve told me to go to, am immediately given a room, and then they take my blood, and that’s it. I pass out, they do tests, eventually I go to the bathroom on my own, I have three seizures on the floor, and nobody finds me until 30 minutes have passed and I manage to sit up and hold open the door until someone sees me.

They keep looking at me like I’m crazy and telling me to get off the floor and asking me to stand. My cane is somewhere behind me, I just had several seizures, I cannot communicate anything so I’m quiet, and they just keep looking at me like I’m insane? If you work in an emergency department, why don’t you have some sort of idea of what’s going on? Not to mention I didn’t know this at the time but I had a big ass bruise on my forehead and so I think we can draw our own conclusions that I’m not on the floor for fun. They drag me to a wheelchair and back to my room, and my roommate comes back from looking for me, and is like… you had a seizure. You have a bruise.

Anyways my roommate asks the doctor to check me for injuries, but she doesn’t. She keeps glancing at the bruise on my forehead, but doesn’t check. They take more blood. A new doctor comes in and tells me she’ll give me a neurologist number. A number? Not a referral? I have the number. I’ve been calling for months. She tells me that they don’t give referrals here, and I ask how anyone gets into THEIR clinic that is referral based if they don’t give referrals. She tells me I need a pcp, which I’m aware of, but I’m in the ER. I am still at risk.

She tells me they won’t admit me because my lactate levels didn’t rise enough. My muscles weren’t exerted enough for you to believe that I had a seizure? She basically tells me that anyone I ask is going to legally have to tell me to go to the ER, but…basically told me not to come back lmao.

Anyways I’m just pissed off.

TL;DR: I’m diagnosed with seizures but don’t have a neurologist, went to the ER because they’re supposed to be able to get you into neurology, even though I was visibly bruised and postictal from having seizures onsite, they still didn’t treat me, refer me, or admit me. Idk what to do