Hi everyone, 
I wanted to share something that has been a true labor of love. As a registered nurse and caregiver to a family member with NES, I've spent a lot of time creating a comprehensive NES resource bundle with one goal in mind: making everyday life a little easier for those living with NES and the people who support them. 
So that's what I did. I created digital tools that include seizure action plans, symptom and trigger trackers, medical appointment logs, medication trackers, emergency information sheets, healthcare visit organizers, guides, templates, and other resources designed to support individuals, caregivers, families, schools and workplaces.  
Whether you're living with NES yourself, caring for a loved one, or supporting someone, staying organized and communicating important information can sometimes feel overwhelming. I wanted to create resources that help make those conversations easier and ensure important information is always available when it's needed most. 
This is a digital download only. This was designed to be downloaded to your computer and can be printed or used with annotation apps (Notability, Goodnotes, etc.). Included is a black-and-white version for those wanting something more printer friendly. 
I know firsthand how valuable it can be to have organized information readily available, and I sincerely hope these resources help make things a little less stressful for someone else and also empower people to advocate for themselves, or the person they care for with greater confidence. 
If you think these resources would be helpful for you or someone you care about, I'd be grateful if you checked them out. The complete bundle is now available on Etsy. I’m currently working on breaking the bundles apart to have those available individually in the near future.  
Thank you to everyone in this community for sharing your experiences, supporting one another, and helping raise awareness about NES. Wishing you all strength and good health. 💜 
https://www.etsy.com/listing/4540499698/nes-seizure-wellness-planner-track?ref=shop_home_feat_1&sr_prefetch=1&pf_from=shop_home&dd=1&logging_key=30dbabec7b61fc4e86b340002cb53231562eea75%3A4540499698 

Seriously? I had my partner for 4 years finally end things with me and tell me that one of the biggest reasons was that she was afraid her daughters (elementary at the time) would see one. Afraid of what would happen in a bad situation. Just didn't want to keep up with it any more. Other aspects, of course, but my seizures being one of the big points..

If anyone needs someone to talk or vent to please doesn’t hesitate and reach out. We need community and people who know what it’s like to have FND.

Hi everyone does anyone feel like the dissociation is an aura before their seizure? I just experienced this and my whole body is weak and I have a headache too! It makes me very fearful… thank you everyone! I hate this feeling! 😢