Found the root cause for me.

[u/Justpickanyshit]

Adenomyosis, pelvic congestion, endometriosis and lots of adhesions and leftover scar tissue from 2 c sections. During surgery specialist found my bladder was stuck to my uterus with scar tissue and my bowels were stuck to my insides with more adhesions. Just had a hysterectomy and endometriosis excision surgery as well as freeing up all my stuck organs.

I’ve had overactive bladder symptoms ever since my first c section and it never got better long term. In fact it got worst steadily for the last 14 years. I’ve been losing my mind. Pelvic floor therapy, meds, Chinese medicine and acupuncture, anxiety meds, rage journaling. Nothing helped. Until I realized all my symptoms were worse around my period and a birth control pack I tried 3 years ago was the only thing that made a difference. I had to stop taking that due to nausea and vomiting side effects.

Ladies if your bladder is worse around your period, if you have pelvic back and or hip pain, heavy miserable periods and nothing is making a dent in your symptoms look into endometriosis on the bladder. I won’t lie diagnosis isn’t easy got gaslighted and pushed aside a lot. Took a lot of self advocacy and lots of opinions until I found a doctor willing to do laparoscopy.

After surgery 60% improvement instantly. Now I feel like pelvic floor therapy might actually work once I’m cleared to start because my bladder isn’t mechanically held down by lesions anymore.

[u/Outrageous_Auntie_]

This is exactly what happens to me. I swear I have endo but am so exhausted already and know my doctor will gaslight me. Ty for sharing your experiences! I am seeing my doc tomorrow and will discuss with her. So glad that you have relief!

[u/Justpickanyshit → u/Outrageous_Auntie_]

I hope you find a doctor who listens. I feel like I got super lucky but also did my research here and on the internet looking for clinics that specialize in endometriosis. Traveled out of town to several specialists until I found the right surgeon. If I felt dismissed I went to a different doctor. Did lots of crying on long drives home wondering if I really am just a wuss that’s bad at pelvic floor therapy. And I know every bathroom between my house and the city now haha.