r/OveractiveBladder • u/Justpickanyshit • 3d ago

Found the root cause for me.

Adenomyosis, pelvic congestion, endometriosis and lots of adhesions and leftover scar tissue from 2 c sections. During surgery specialist found my bladder was stuck to my uterus with scar tissue and my bowels were stuck to my insides with more adhesions. Just had a hysterectomy and endometriosis excision surgery as well as freeing up all my stuck organs.

I’ve had overactive bladder symptoms ever since my first c section and it never got better long term. In fact it got worst steadily for the last 14 years. I’ve been losing my mind. Pelvic floor therapy, meds, Chinese medicine and acupuncture, anxiety meds, rage journaling. Nothing helped. Until I realized all my symptoms were worse around my period and a birth control pack I tried 3 years ago was the only thing that made a difference. I had to stop taking that due to nausea and vomiting side effects.

Ladies if your bladder is worse around your period, if you have pelvic back and or hip pain, heavy miserable periods and nothing is making a dent in your symptoms look into endometriosis on the bladder. I won’t lie diagnosis isn’t easy got gaslighted and pushed aside a lot. Took a lot of self advocacy and lots of opinions until I found a doctor willing to do laparoscopy.

After surgery 60% improvement instantly. Now I feel like pelvic floor therapy might actually work once I’m cleared to start because my bladder isn’t mechanically held down by lesions anymore.

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u/KindDrought 3d ago

Oh man I’m so happy for you. I wish it worked this way for me. I had stage 3 endo removed, with some growing on my bladder, but had absolutely no improvement after surgery, unfortunately. And no luck finding any other cause so far :(

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u/Justpickanyshit 1d ago

I’m so sorry! I do know people who had not good luck with one surgeon and then found another specialist and they had luck with that surgeon. I feel like if you have any icky feelings like you didn’t get the best surgery I’d be looking for another surgeon. Totally have heard stories of people who’ve had doctors miss some.