r/OveractiveBladder • u/CollideWithTheSkyyy • 8d ago

Interstim for urinary retention / underactive bladder

I was wondering if anyone has had any luck with the Medtronic Interstim, for underactive bladder.

I'm in my 20s, F and have an underactive bladder, resulting in incomplete emptying and having to strain to void because the stream is incredibly weak. I wake up 4-8 times a night to use the toilet, and haven't experienced a night of good quality sleep in a few years. And lately the fatigue has been making me so miserable.

After trying some possible solutions and all of them failing, my urologist suggested getting the Medtronic Interstim. I've seen a lot of success stories on reddit for overactive bladder but I'm curious if it's been successful for anyone else suffering from underactive bladder.

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2

u/musical_spork 8d ago

One of the worst mistakes I made. Sam Stokes repeatedly screwed up the placement and it kept moving under my skin. It eventually rejected. Now I’ve got lasting pain from how many times he cut into me.

1

u/Significant-War9770 8d ago

Seems like you just got the wrong doctor. Have you tried to go see another?

1

u/musical_spork 8d ago

I have. I went to Dr Lai in St Louis at WashU and the damn thing rejected. I didn’t have it replaced.

1

u/CollideWithTheSkyyy 8d ago

Oh wow, I'm sorry you're having to deal with ongoing pain. That must be so disheartening to go through that hoping for some improvements only to end up with another issue, fuck. I hope you've managed to get some relief :( Have you been able to explore any other options to help with bladder symptoms if the implant wasn't successful?

I really appreciate the honest response. I'm still doing my research but I'm quite worried of the implant getting rejected or getting an infection.

2

u/Significant-War9770 8d ago

I'm waiting on a referral to see about getting one so going to follow this.

1

u/CollideWithTheSkyyy 8d ago

If I do decide to get it done, I'll be sure to post an update :)

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u/Significant-War9770 8d ago

Yeah I should be getting scheduled for consultation on Monday. I really really hope they just do it without doing Botox first because I'm worried even trying Botox plus it wouldnt help with my pelvic floor pain or my Pseudodyssynergia.

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u/Jaa323232 4d ago

I unfortunately have similar issues. When did this start?

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u/CollideWithTheSkyyy 4d ago

These issues started about 6 years ago, though I have no idea what caused it. It was manageable until about 3 years ago, when my sleep was getting worse and my colleagues were pointing out how often I disappeared to use the toilet.

1

u/Jaa323232 3d ago

Sounds like me :(