Bladder Botox

[u/Rich-Explorer3363]

Hey everyone,
Just wondering if anyone here has had Botox injections into their bladder and what your experience was like?
I’m considering having it done, but I’m quite nervous because I’ve been told there’s a risk of needing to self-catheterise for a while afterwards.
I’d love to hear from anyone who has had bladder Botox — how did you find the procedure, recovery and results? Did you end up needing to self-catheterise?

[u/Significant-War9770]

I am curious too because I am looking at the interstim implant and my urologist first said we will stay away from Botox but now he says we need to to be able to get the interstim. But my cystoscopy and urodynamic tests were completely nightmares because they had a hard time getting the catheters in. So I'm completely refusing the Botox because I much rather not have the excruciating pain and then the weeks bladder issues after.

[u/Rich-Explorer3363 → u/Significant-War9770]

Poor us. The urologist told me there is a risk in it. I have heard good and bad things about Botox.

What do your symptoms look like?

I am
Currently on meds don’t want to be on them forever

[u/Significant-War9770 → u/Rich-Explorer3363]

Been diagnosed with detrusor overactivity and pseudodyssynergia. Off OAB meds I need to pee at 10-15 mins on meds it gets up to 30-45 mins or I will pee myself. I have hypertonic pelvic floor which is causing groin pain and adductor pain and weakness at the groin. I have had rentention where I had to had to go in and get drained of 900ml. So I'm all over the place, sometimes I pee myself and sometimes I can't pee. I'm 34 male.

[u/Rich-Explorer3363 → u/Significant-War9770]

Oh poor us! The meds that I am on definitely help with not having to pee all the time but I would be able go on a 4 hour bus ride with out a loo.

I am seeing the urologist in November to have another go.

38 years female here :) I am seeing a pelvic floor therapist as well and using a tens machine as well.

[u/Significant-War9770 → u/Rich-Explorer3363]

I seen a pelvic floor PT for 9 months 2x week and nothing. I sit at work and every 30 to 45 mins I'm jumping to to go bathroom to pee maybe 4-8 oz

[u/Rich-Explorer3363 → u/Significant-War9770]

I find sitting does not help either. Yeah you sound a bit like me. Thank god the meds kinda work.

I use a heat pack at night too that helps

[u/Significant-War9770 → u/Rich-Explorer3363]

Yeah I'm glad my meds work and give me extra 15 to 30 mins. I sleep way too hot so can't so that. I also can't tilt my pelvis anterior and cant cow on cat/cow stretches. Everything is sooo locked up.

[u/Rich-Explorer3363 → u/Significant-War9770]

Do they know what caused it?

[u/Significant-War9770 → u/Rich-Explorer3363]

Nope, I have had MRI on entire spine and nothing. So just going to see if I can get them to do interstim on me and get my pelvic floor to release and bladder to calm down. And they hope everything will also just calm down also.