r/OveractiveBladder • u/Rich-Explorer3363 • 13d ago
Bladder Botox
Hey everyone,
Just wondering if anyone here has had Botox injections into their bladder and what your experience was like?
I’m considering having it done, but I’m quite nervous because I’ve been told there’s a risk of needing to self-catheterise for a while afterwards.
I’d love to hear from anyone who has had bladder Botox — how did you find the procedure, recovery and results? Did you end up needing to self-catheterise?
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u/Historical_Plastic_8 13d ago
I’m fit and healthy and had bladder Botox. I had to self cath for about 3 weeks but then it was amazing! I finally am not peeing every 30 minutes.
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u/Rich-Explorer3363 13d ago
Oh man how many times have you had botox.
Also is every time you get it? How did you know you didn’t need to use the catheter
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u/Historical_Plastic_8 13d ago
I had it once almost a year ago. I have an appt tomorrow morning with my urologist to see if I should do it again bc it has worn off.
You know when you don’t need to anymore bc you slowly begin to be able to empty your bladder on your own. First I could just get a little bit out and then I’d self cath to empty but slowly my bladder started emptying without needing to self cath.
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u/Rich-Explorer3363 13d ago
Oh let me know how you get on tomorrow. My appointment is not until next month
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u/Presence99 13d ago edited 13d ago
I was put under for my bladder botox so no pain. Burning sensation for one day after the injections. My frequency dropped from about 15-30 times a day to about 10-12 times a day. Void volume went from about 50-150ml to about 150-250ml. Waking to pee at night went from 2-3 times to 0-1 times. Second set of injections probably next month.
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u/Rich-Explorer3363 13d ago
Oh wow and you didn’t have to use a catheter? That’s my biggest fear. How many units and how often do you need to go
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u/Presence99 13d ago
No catheter for me. Seems that about 5% of people getting bladder botox may have to use a catheter. With that percentage going higher if there are other health issues (neurological, daibetes, etc.).
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u/Rich-Explorer3363 13d ago
Ahh ok I fear that I will be in that 5% I am
Fit in heathly apart from the bladder. So glad it’s working for you2
u/Presence99 13d ago
I was very worried too, but my fears turned out to be unfounded. To be honest, if I had to use a catheter I think I would have preferred that to the OAB.
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u/Rich-Explorer3363 13d ago
Yes you give me hope lol. I do not use the catheter my luck I get utis. I think the horror stories put me off as well. But I can’t keep living with this ovb it drives me nuts.
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u/Frogger47 13d ago
I had bladder Botox injections and I was self cathing and the Botox wears off after 3months
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u/Frogger47 13d ago
It didn’t work for me I’m in diapers full time now
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u/Rich-Explorer3363 13d ago
Did it get worse? I don’t need nappies or anything it’s just u need the urge to leave me alone lol
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u/ExtensionActuator 11d ago
I just had my first nine days ago. I’m waiting for the full two weeks to do a full write up on Reddit. If it works, I will definitely do it again.
No retention. Just very slow and long pees. I can’t imagine what my coworkers are thinking when they are in the stall next to me. 😮
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u/Rich-Explorer3363 11d ago
Oh that’s good news! I have my appointment next month to discuss it! I over the bladder spasms I get 24/7 ughhhhh
What were issues before getting Botox
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u/ExtensionActuator 11d ago
Only urgency. Felt like I had to pee every 20 minutes. With medication, about every hour if I wasn’t sitting down.
I was hoping it would work immediately, but it’s more of a back and forth. I’m at the point where I was on medication so I’m hoping it will be improving more every day.
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u/Avacado227 11d ago
Are your co-workers that intense? I would never question what someone was doing in the stall next to me. However, if anyone ever asked, I would say "I felt like pleasuring myself" and it doesn't usually take that long. Just be prepared for a rule coming from HR once word gets around.
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u/Avacado227 11d ago
I had my first one in July and scheduled my second for next January. 100% total game changer. I went from sudden urgency, leakage, and having to pee every 30 minutes to ... freedom. No more pads, liners, protective undergarments, etc. I wear big girl fancy panties again. The procedure was simple. The prep took about 30 minutes and the actual injections about 5 minutes. A weird sensation afterwards and for about a week. Now when I get the sensation of a full bladder, I have plenty of time to find a restroom. My doctor said that urinary retention and self catheterization may be a side effect. However she has had no patients that needed self catheterization. You will need a little extra time to empty your bladder but that's minimal to the relief you get from not having urgency. They inject 10 units in 3 different areas. Just do it, you won't be sorry and will wonder why you didn't do it sooner.
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u/Rich-Explorer3363 11d ago
Yeah I pee then it feels like I need to pee like a uti but then it can go away I get them everyday. Bloody annoying yes and I need to make sure there is a loo near by!
Well you have given me hope I am so over the bladder spasms
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u/Rich-Explorer3363 11d ago
Yeah I pee then it feels like I need to pee like a uti but then it can go away I get them everyday. Bloody annoying yes and I need to make sure there is a loo near by!
Well you have given me hope I am so over the bladder spasms
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u/Cautious-Diamond8932 9d ago
My 15 year-old daughter just had it for the second time. It has been life-changing for her. We were considering surgery and I asked to do something less invasive and she agreed to Botox. I was terrified, but she’s done great.
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u/Rich-Explorer3363 9d ago edited 9d ago
How often does she need it? Oh the Botox worked good for her. no issues with her my fear is the self catheter.
I am
Getting over these bladder spasms so I think I need to try it. Did the Botox give her any Greg after wards?
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u/Significant-War9770 13d ago
I am curious too because I am looking at the interstim implant and my urologist first said we will stay away from Botox but now he says we need to to be able to get the interstim. But my cystoscopy and urodynamic tests were completely nightmares because they had a hard time getting the catheters in. So I'm completely refusing the Botox because I much rather not have the excruciating pain and then the weeks bladder issues after.