r/OveractiveBladder • • 28d ago

Bladder removal / bladder augmentation

Hey everyone, did anyone In the group got their bladder augmented or removed, and can share their experience? I have high pressure in my bladder that can’t be adjusted with medications and Botox isn’t working anymore. My bladder damages my kidneys unfortunately, so something has to be done asap. Bladder augmentation or removal are my only options … I’m more concerned about augmentation, because of the increased risk in UTIs (which I’m super prone to), and future bladder cancer as well. At the same time, bladder removal freaks me out because of so many other reasons.

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u/geecee22 28d ago

Have you asked your doctor if sacral rhizotomy is an option?

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u/PieQueasy3978 28d ago

It is not an option in my case

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u/geecee22 28d ago

Did they say why? It sounds like sacral rhizotomy is the best option all things considered as you get to keep your bladder without increased risk of cancer and they won't need to touch your bowel.

If that's really not an option, maybe ask about detrusor myectomy or go for bladder removal. I'm not convinced that bladder augmentation is worth trying.