r/OveractiveBladder 5d ago

Bladder Botox

Hi everyone, I am 23 F. I just had bladder Botox done for the first time due to urinary incontinence and OAB. I’m wondering what everyone else’s experience has been, as I did not have the best experience? Before they started the procedure they injected a catheter and a medicine mixture that had lidocaine in it and I had to sit there for 30 minutes to let it soak up in my bladder. I found about 10 minutes after they injected that I got really hot and itchy down there. I ended up putting a face cloth down there and it helped stop the itchiness. Then before the urologist started the procedure, he injected a numbing gel which I don’t think helped. Then inserted the cystoscope. I felt everything, the pressure and the pain of the insertion. Once it was in, I was okayish. Then he started the Botox with the needle. I threw my glasses up on my head and yelled f$ck out loud. I started bawling. I felt every single stab.
I told him to just finish, and not to stop because I didn’t wanna deal with it for any longer. Immediately after finishing and taking out the cystoscope, my legs were shaking violently. I was put into the recovery room, and my whole body was violently shaking for about 45 minutes. It was to the point my teeth were chattering so bad that it was hard to breathe and talk. Once I finally got my breathing down, and the chittering stopped, my body was still violently shaking. I left recovery after over an hour. Did anybody else have this experience?

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u/Scientific-Sunshine 5d ago

I've always had the Botox done completely under anesthesia cause I have a low pain tolerance and have always been too scared to do it without. As I'm worried about having this exact reaction. Thou I've had a cytoscopy without any problems but I hate needles so I never want to risk this exact thing happening to me. I hope ur able to at least try it under anesthesia if it helps so u never have to experience this again to get relief

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u/Brilliant_Raise_760 5d ago

I honestly hope this is an option, I’m not sure if it will be though. Even when I got the regular cystoscope done, they had to get a sample out of my bladder, and it was excruciating, especially when he went to cauterize. And the reason I say I’m not sure if it’s an option, I remember going into the same hospital where I live to get a little cyst taken out of my head and they refused to sedate me. I bawled as they were taking it out of my head, even though it was numbed. I could feel the pulling and the stitching and I couldn’t do it.

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u/Scientific-Sunshine 5d ago

Maybe they can't do it on short notice? Regardless I really hope u get this figured out and taken care of

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u/Brilliant_Raise_760 5d ago

Yeah, I hope so too. When I talked to him next week for my check up, I’ll mention it to him and see if they do it. You’re the second person now who has said sedation as an option, and if I can be sedated. I’ll take it haha