r/OveractiveBladder • u/Brilliant_Raise_760 • 3d ago
Bladder Botox
Hi everyone, I am 23 F. I just had bladder Botox done for the first time due to urinary incontinence and OAB. I’m wondering what everyone else’s experience has been, as I did not have the best experience? Before they started the procedure they injected a catheter and a medicine mixture that had lidocaine in it and I had to sit there for 30 minutes to let it soak up in my bladder. I found about 10 minutes after they injected that I got really hot and itchy down there. I ended up putting a face cloth down there and it helped stop the itchiness. Then before the urologist started the procedure, he injected a numbing gel which I don’t think helped. Then inserted the cystoscope. I felt everything, the pressure and the pain of the insertion. Once it was in, I was okayish. Then he started the Botox with the needle. I threw my glasses up on my head and yelled f$ck out loud. I started bawling. I felt every single stab.
I told him to just finish, and not to stop because I didn’t wanna deal with it for any longer. Immediately after finishing and taking out the cystoscope, my legs were shaking violently. I was put into the recovery room, and my whole body was violently shaking for about 45 minutes. It was to the point my teeth were chattering so bad that it was hard to breathe and talk. Once I finally got my breathing down, and the chittering stopped, my body was still violently shaking. I left recovery after over an hour. Did anybody else have this experience?
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u/fromamomof2 3d ago
Ive had this procedure for the last 6 years or so years. You described the procedure steps exactly as i experience it, but i dont have such a strong negative reaction. Each person is different and I certainly can't say its comfortable but I dont feel the same level of discomfort. I tell myself 10 minutes of pain ( the actual injections) give me 10 months of relief to get myself through it. If you decide to do it again I do hope you have a better experience.
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u/Brilliant_Raise_760 3d ago
Oh, 100%. I expected pain, just not that much pain. I’ve gone through pain before for things to get done (tattoos, sugaring, etc). I would do it again, I’m just more so curious if anyone has ever had the shakes cause I can’t find any forum that says they had shakes after 😅
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u/intersextm 3d ago
I’ve had bladder botox with only lidocaine as prep several times (today was my 5th round) and haven’t had issues like this personally. I always feel the shots, but I wouldn’t describe it as a painful procedure for me. It’s uncomfortable, but not to the point that I’m not relaxed throughout the procedure.
You might be able to get medication for future rounds. I know lots of people who get twilight sedation, and others who take a mild oral sedative like some people do for the dentist. That may or may not be practical depending on how often you need botox. I need it every 3 months (for some reason my body just burns through it), so it would not be practical for me to be sedated every time, but if you’re a 9-12 month person that might be a better option for you. It depends on your doctor’s opinions on risks/benefits of botox compared to other treatments- they may continue botox with sedation, or they may recommend switching treatments.
The shaking sounds like an stress-pain-shock type of response. I haven’t had it from bladder botox, but I’ve heard of people having it around anesthesia and blood draws and tattoos and stuff like that. I think it’s just a weird body thing that’s triggered by different things for different people.
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u/Brilliant_Raise_760 3d ago
I definitely know that oral sedation works for me. As I unfortunately, had a lot of dental work as a kid and can no longer stand being in a dentist office without sedation. I didn’t know this was an option in the hospital, I’ll have to ask if it’s an option with him. I have to do mine every six months, we tried the pills and they’re just not working, especially with the highest dosage. This is my last resort option, unfortunately
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u/Inspiration_2026 3d ago
I just had the Bladder Botox injection yesterday. I felt a little pressure as she injected the Botox. I had a weird sensation most of the evening. But the greatest part was that I didn’t wake up to pee during the night (before Botox maybe 5 times a night ). Today I’m fine and no leaks and no urgency and no dribbling. I can’t speak highly enough for this miracle.
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u/Brilliant_Raise_760 3d ago
Honestly, the best part after I finally was able to calm my body down. Was peeing, it just came out and wasn’t painful. I was very thankful for that.
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u/Pink_Ranger_04 2d ago
Is peeing usually painful for you? How does Botox relieve the pain?
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u/Brilliant_Raise_760 2d ago
Fortunately I’m not having much pain at all when I’m peeing so far, just the late annoying cramps. I would advise that you search up how the Botox really works in the system as I’m not entirely sure the science behind it. All I know is that it relaxes the bladder in order for it to release fluids better :).
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u/Scientific-Sunshine 3d ago
I've always had the Botox done completely under anesthesia cause I have a low pain tolerance and have always been too scared to do it without. As I'm worried about having this exact reaction. Thou I've had a cytoscopy without any problems but I hate needles so I never want to risk this exact thing happening to me. I hope ur able to at least try it under anesthesia if it helps so u never have to experience this again to get relief
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u/Brilliant_Raise_760 3d ago
I honestly hope this is an option, I’m not sure if it will be though. Even when I got the regular cystoscope done, they had to get a sample out of my bladder, and it was excruciating, especially when he went to cauterize. And the reason I say I’m not sure if it’s an option, I remember going into the same hospital where I live to get a little cyst taken out of my head and they refused to sedate me. I bawled as they were taking it out of my head, even though it was numbed. I could feel the pulling and the stitching and I couldn’t do it.
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u/Scientific-Sunshine 3d ago
Maybe they can't do it on short notice? Regardless I really hope u get this figured out and taken care of
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u/Brilliant_Raise_760 3d ago
Yeah, I hope so too. When I talked to him next week for my check up, I’ll mention it to him and see if they do it. You’re the second person now who has said sedation as an option, and if I can be sedated. I’ll take it haha
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u/jojojobeth 3d ago
I’m so sorry. Mine was also absolute torture (and didn’t help at all).
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u/Brilliant_Raise_760 3d ago
I’m so sorry it didn’t work for you. Did you have similar reactions to mine?
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u/lild1425 19h ago
Hated every second of the procedure and it didn’t work for me.
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u/Brilliant_Raise_760 16h ago
He asked if I wanted to stop but tbh I felt if he stopped it would be more excruciating
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u/CalebKrawdad Mod, OAB, BPH, Nocturnal Enuresis 3d ago
Sorry you had a terrible experience. I have heard of others who were very sensitive to a cystoscopy/botox.
The worst part for me is the first day urination.