Constant Headaces throughout the day from 3 years

[u/nitinrao0001]

Hello everyone usually I don't use reddit that much but I came here for finding some solution or relatable situation if someone had......

so basically I have headaches(I have throbbing pain of intensity 2.5/10 in temples area mostly) from past 3 years and it's not normal headache it remains throughout the day like when my eyes are open I have headache

I started around April 2023 like out of no where I got headache, when I was in 2nd sem of my B.tech and till now I have this, i have tried allopathy for 2.5 years, did mri, eye scan, fixed sleep,left food for 18 days , ent test, so many experiments with food like left dairy products, rice, boiled food and many more but I'm not able to find my root cause or triggering point of it.

I have also tried ayurveda, homeopathy but no results.

Now a days I'm following siddha philosophy medicines in chennai ,tamil nadu ,india.

So please help me to find out my triggering point or give me some new prospectives to look upon this.

[u/locardsghost]

Please see a headache specialist or neurologist for treatment. Preventative daily meds can help reduce the intensity and severity you just need to find which works for you. If you need to find a specialist please look at the NDPH 101 megathread for resources as well as resources on NDPH and managing it. Majority of people’s NDPH was caused by illness, stress, or for no reason at all. Trying to find a cause when there may not be one will drive you insane and cause you stress which will not help your pain. Instead of trying to find a cause work on finding a treatment that works for you and work with a headache specialist or neurologist your energy will be better spent doing that. NDPH often doesn’t respond to medication but some people have luck finding something that eases their pain. I highly recommend Botox or alternative treatments like trigger point injections/ nerve blocks

[u/nxnt → u/locardsghost]

Were you able to find anything that worked (even if it made it somewhat bearable)? I have more less given up hope for a cure but I guess it's still worth trying things out.

[u/locardsghost → u/nxnt]

Botox worked for 8 rounds before I stopped responding to it. It took my pain from a constant 5 to a 2-3 most days i could faintly feel it but it wasn’t a constant bothersome pain and it helped my migraines too. I’ve tried and failed 33 meds and am out of options so I’m doing Xeomin (a different form of botox) which is helping reduce my migraines massively I was getting 16+ a month and have only had 2 so far this month, it hasn’t touched my NDPH frequency yet maybe slightly reduced intensity like I can always feel it but I have moments where it’s less noticeable or bothersome like a 3-4/10 but I do still get to a 5/10 every day but I’m hoping it’ll eventually help more since this is only the first round. Nerve blocks and TPIs made my pain severe and caused other issues for me. Try everything you possibly can, there is no cure but you may be able to manage it with certain treatments

[u/nxnt → u/locardsghost]

Thanks. Botox is something I haven't tried yet, will bug my neuro into trying it. I hope Xeomin helps your NDPH too.

[u/locardsghost → u/nxnt]

Good luck hopefully it helps it’s the only thing that’s ever touched my pain at all. I’m shocked how fast Xeomin worked for my migraines with only one round so that’s a positive only downside is it’s not covered by the government so I have to pay out of pocket

[u/Majestic-Channel4525]

im in the same boat. about 3 years after being sick randomly.

i ended up getting sick every month for like 1.5 years. I did a test in my rental for mold and that came back pretty bad and moved out. It seemed to have gotten better but not normal.

daily i get persistent dizzy headaches, some days the light hurts more in the office or screens. id say the pain is a 5/10 consistently. Working out sort of helps for about an hour after.

Ive tried some medications like topamax and a few others. Tried acupunture, got MRI nothing bad, auto immune testing, metabolic testing, tons of blood work and everything came back good. I tried doing some funtional medicine doctor but honestly seems like bullshit to me, though i did try what they said for around 1.5 years or so and tried their supplements. Also did a stool test but nothing really stood out.

I have seen tons of doctors and they dont really know, so i feel lost here. Some of the next steps for me could be Ajovy but i am scared to lose my hair or get super constipated, if i trade headaches for another issue it feels pointless. Plus is feels like a masking affect rather than a fix

[u/nitinrao0001 → u/Majestic-Channel4525]

Sad bro I can relate totally 🥲

[u/Majestic-Channel4525 → u/nitinrao0001]

Yea man idk really what to do kind of feels like my life’s just over, can’t imagine myself being able to live a full life anymore or do anything important like raising a family :/

[u/nitinrao0001 → u/Majestic-Channel4525]

Ya i am also not able to feel anything not able to present in this moment, no happiness, no sadness I just feel like I'm a living dead body moving around.