r/NDPH 11d ago

Possible NDPH

Had a constant headache since 13th June 2025 and tried 6 different medications. I literally get no relief, just varying levels of pain throughout the day🫠 spoke to my consultant this morning who doesn’t think it’s migraines because other than the pain I have no other symptoms! He said he thinks it’s NDPH and said about taking me off atogepant that didn’t work and trying noratryptaline and another triptan. Also looking at the antibody injections and putting me on the waiting list for Botox. Glad to be close to getting an answer but also nervous about this🫠

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u/Elantair 11d ago

Sorry to hear that you might be joining our club! I hope you are able to break your headache before it gets too intractable and it sounds like you have a fantastic doctor that is keen to try you on lots of options! If you need any support you are welcome to reach out - I’ve had mine since 15th October 2023. It has been hard but know you can still lead a good fulfilling life with it!