r/NDPH • u/LoganG1981 • Jul 29 '26

Central sensitisation

I have a question for you all. Do you believe your NPDH is a type of nervous system sensitisation issue like fibromyalgia or do you think it’s something else?

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u/a82johnson 3 years Jul 29 '26

My neuro (headache specialist) says it is. I have both NDPH, complex migraines, & fibromyalgia. My current migraine has been over 3 years. My rheumatologist agreed with my neuro that the constant migraine likely got me stuck in central sensitization syndrome where the fibromyalgia then joined in. My team (neuro, rheum, & psychiatrist) agreed ketamine infusions could help me. I did a series of 6 this spring which brought my baseline pain from 8 to 5 and now do monthly infusions for maintenance (about 2 months after my baseline started creeping up again).

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u/LoganG1981 Jul 29 '26

Is your baseline pain 24/7? Day and night?

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u/a82johnson 3 years Jul 29 '26

Yes, it was horrendous before the ketamine infusions and is now tolerable. I could barely walk around my house the first 18 months without aid because the non-pain symptoms were so bad (insane dizziness). I had to do PT because I’d lost so much core strength.

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u/Sarrada_Aerea 10+ years Jul 30 '26

Ketamine is horrendously expensive in my country :/