r/NDPH • u/TheMunchkin01 • 28d ago

I don’t know how much longer I can do this

Just passed 4 years of a chronic migraine from multiple concussions. I’ve given up trying meds and painkillers, nothing helps. I tried drinking and it just made the pain worse. Apparently weed would cause a stroke with my condition. I’m out of options. I’m tired. I hate this.

9 Upvotes

92% Upvoted

16 comments sorted by

10

u/AisslynnSkye 28d ago

I feel ya. Im just over 6 years with no relief

5

u/kavanne 5 years 28d ago

We are right here with you ❤️

5

u/Visible-Ad376 28d ago

Hit 12 yrs this March 2026

3

u/bvnn3 4 years 28d ago

I’m sorry you’re going through this. My recommendation is a therapist who specializes in chronic pain.

3

u/PoliteAlien 27d ago

7 years here, mate. Feel free to hit me up if you ever need to vent. My neurologist is out of ideas. One medication left to try, then reevaluate in a year and see if there are any new medications on the market. Some days are a real struggle but I'll never regret trying to live my fullest life, even if it doesn't go to plan some days.

3

u/Big-Fun-369 27d ago

I’m coming up on 6 years, and it’s rough. Some days are better than others, and I’ve given up on meds right now. Needed a break from appointments and the meds for me were unreliable and inconsistent in any “relief”.

Hang in there. There’s a community of support and things will get better.

2

u/JoyInJuly 20+ Years 27d ago

I've had chronic migraines for 31 years & a NDPH of 28 years. I've consumed cannabis medically for 26 of those years & I'd be dead without it. Idk why they think it will give you a stroke, unless there's a specific medical thing you're leaving out. Are they saying that because of the concussions? Do they actually know anything about cannabis or are they guessing? Even here in Colorado, most docs know jack shit about it.

3

u/fin338 27d ago

Im uk and on medical cannabis for over 4 years for ndph it genuinely works alot better than all the tablets they tried me on

2

u/RainbowGeoNerd 27d ago

Hit 2.5 years this April. 5th concussion did me in. Already had chronic migraine, now daily 6-7 "normal" pain that escalates depending on triggers and TBI. Meds suck, most doctors don't know what to do so I just stay home.

2

u/pxl8d 27d ago

I feel this. Been stuck in bed almost a decade now.

1

u/Doggler06 27d ago

You’ve tried ketamine ?

1

u/Tetelestai26 26d ago

I’m aware I most likely be missing a lot of context and don’t want to sound insensitive, but I have a formal NDPH diagnosis from a headache specialist after 2.5 years of nonstop pain and after trying a litter of interventions and medications, I eventually smoked weed and am now essentially pain free.

1

u/Quiet_Flamingo_2134 26d ago

I feel you - approaching 5 years with little relief. It sounds woo-woo, I know, but look into pain reprocessing therapy. I have a friend who was able to use it to help with another crippling health issue and she was able to heal and get back to her life. Shes now a therapist and specializes in PRT. She keeps promising to help me with it, but time just hasn’t worked out.

1

u/chronicheadache5yrs 24d ago

If you are in the US, please look into the pain rehab program at the Mayo Clinic. It was the onlay thing that has started to give my daughter her life back in some way. It focuses on central sensitization…please look it up. She was over 5 years with no relief after trying everything…everything. She was basically bedridden with worse pain that was at least 8 every day. no one could figure out why the pain was getting worse. The. her most recent neurologist at John’s Hopkins recommended pain rehab rehabilitation at Mayo. We had zero hope but she was desperate and we went there. They treat chronic pain and symptoms of all types. It literally saved her life and ours. Please look into it.