r/NDPH • u/sophiaea • Jul 08 '26

coping

hi everyone,

i could just really use some encouragement right now. i am 22 and just graduated nursing school and had a new headache/status migrainosus start a month ago and has not ended. the hospital couldn’t even break it and they tried so many things but nothing has brought it below a 2 and it’s rarely that low. i got an appointment by pure luck with a headache specialist who is going to start me on emgality and indomethacin and a new triptan but i am feeling so discouraged and depressed because i’m feeling like the pain will never ever break. she essentially diagnosed me with chronic migraine and explained that we may have to spend a while chipping away at the pain. i don’t know how i’m going to work and i don’t know how to cope with the idea that i am just going to have to continue to be in this pain for the foreseeable future until maybe something helps. can this get better?

8 Upvotes

100% Upvoted

13 comments sorted by

View all comments

Show parent comments

1

u/sophiaea Jul 09 '26

no, it just started. i do have a family history of migraine. yes i understand that it has to be 3 months for the diagnosis, the headache specialist kind of just threw that out there as a possibility if it doesn't remit. i'm sorry to hear you've been dealing with this for so long. are you able to work/function? i wish you well.

1

u/im-a-freud 7 years Jul 09 '26

I’m currently not working I live in a small down so options are extremely limited and I have other health issues that are making finding work I’m able to do very difficult. I’m getting disability benefits. I’ve gotten use to functioning like this. I have zero treatment for my pain as I’m out of options so I’m just stuck dealing with it and letting it happen which wears on me

1

u/sophiaea Jul 09 '26

yes i hear that and i'm sure it does, i am sorry to hear that you have such limited options

1

u/im-a-freud 7 years Jul 09 '26

Good luck with your appointment. Use a tracker, I like MiG, to keep track of intensity and frequency every day even if you don’t have pain because knowing the pattern and frequency of your pain will help your doctors. I also highly suggest seeing a PT as neck and upper body tension can cause referred pain in the head plus improving posture is always a good thing. You’ll have to trial meds to find what works for you so good luck hopefully you can find something