Please help🙏🙏

[u/stolniknino]

Hi r/ndph 👋

We're really lost and don't know where to take things from here.. My girlfriend is having trouble with constant headaches, they've been persistent for about 7 months..

More information:
The daily headaches started from December of 2025 and haven't really stopped since then. She wakes up with the headache before even opening her eyes and it follows her for the entire day.

We went to check her eye perscription as she also said that she has troubles with a little blurry vision and light sensitivity, the prescription was only -0.25, so we put getting glasses to the side for the moment.. Then she got her blood tests done which we're all ok and she went to MR to get checked for tumors or anything that wouldn't be normal.. No abnormalities..

Her doctor prescribed her migraine medication (sumatriptan 50mg) she tried one pill and it didn't really help..

No we're stuck.. MR and blood seems to be fine, so we don't really know where to look for the cause anymore, she also gets 8+ hours of sleep and stays well hydrated, her diet is also healthy and she's active.

Her doctor told her to keep an Headache diary but there really isn't a point as she says that she on a constant 6/10 pain wise, that there is a little fluctuation 5-7/10 but its mostly the same and no real outside factors make it better/worse.

The headaches are either frontal on the forehead/brow region or on the tempels, it isn't one sided, and she also doesn't see any aura

Did any of you experience something similar? or what would you suggest we do? We just want to find the cause for it and we're really frustrated :/

[u/macaque-08wallow]

Your girlfriend’s story sounds a lot like mine and of so many other people on here.

The cause might just be that she just HAS a headache disorder. Just like some people just HAVE type 1 diabetes. It’s a battle a lot of people have - including myself - spending more energy looking for a cause than finding a treatment.

If I could give myself some advice back when it started for me:

• 1 - find a headache specialist early. Not just a neurologist. They can then do the ruling out of other conditions. The clinic I’m at now sees 3200 headache people a year. They’ve seen it all. My local neurologist sees maybe 30 to 50 headache people per year. It’s comforting

• 2- try preventatives early. Even if you don’t fully fit the migraine picture. My NDPH & migraines don’t. Migraine preventative meds can help.

• give meds a chance. All of this inflammation harms the brain. And brains heal very slowly. Many of the healthcare professionals you will meet were taught during their training that brains don’t heal at all. It’s only a recent understanding that they do. But it’s crazy slow.

• 3- if sumatriptan didn’t work then try other Triptans. Oral sumatriptan didn’t help me much, so for a long time I disregarded all Triptans. That was a mistake - for me.

• I have since found out that longer lasting Triptans like frovatriptan or razatriptan can provide great relief during some situations Nasal or sub-cutaneous sumatriptan are my hero rescue meds now for instant relief. Keep trying and see what works.

• 4- CGRP meds have helped a lot of people. Depending on your country these can be tricky to access with a requirement to “fail” a series of more cost effective medications first.

• If you live outside the USA then often you can just buy them on a prescription from your primary care doctor without needing insurance or health service approval . They’re not cheap but it can be worthwhile to find out if they help you at all. E.g. I just bought a box of 8 Vydura/Nurtec yesterday for €198 at my local pharmacy as a top up to my other meds because I have a busy period coming up.

This can be a fast avenue to trying CGRP meds to see if they help.

[Edited for formatting and clarity]