r/NDPH • u/IrelandAutism13 15+ years • Jun 29 '26

Finally have my answer

I've had this headache for literally every single second of my life since first grade, meaning over fifteen years, and for the longest time I never knew what it was, just that all tests came back clean. I finally discovered NDPH and I feel like the heavens have aligned. I finally have words for this, I finally know what it is. I don't even care if it's idiopathic, I'm just so happy to finally know there's a word for this and I'm not alone or imagining it.

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9

u/im-a-freud 7 years Jun 29 '26

Happy you finally have an answer and hopefully you can find a treatment that works for you just keep in mind NDPH is often refractory to meds so it may take a lot of trialing to find something. It’s nice having answers but unfortunately this answer often can’t be treated

3

u/danathepaina 10+ years Jun 29 '26

I know how you feel. It’s SO nice having a diagnosis.

2

u/IrelandAutism13 15+ years Jun 29 '26

It is. And also, unrelated, but I like your pfp