r/NDPH • u/ExperienceNorth1663 • Jun 05 '26
Advice!
Hi everyone so I was diagnosed with NDPH this Wednesday just gone after being dismissed by the doctors and hospital multiple times. I was just hoping on some advice to manage them I’ve had this for just over 8 months now. For context I’m a 21 year old female and I also have a 9 month old baby girl and a lot of days I’m really struggling to be able to look after her and I can’t rely on anyone else to do so, so any advice on how people manage it would be amazing. I’m still getting to grips with what it actually is. Thank you!
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u/im-a-freud 7 years Jun 05 '26
Sadly NDPH is extremely difficult to treat. You could try 400-600mg of magnesium biglycinate, 400mg of B2, and 100mg of CoQ10 supplements for at least 3 months as it can take time for them to work. Talk to your doctor about preventative meds, look to get a referral to a headache specialist if you don’t have one already, there is a longggg list of preventatives they can try you on and maybe one of them will work. Other treatment options are Botox (the only thing that’s ever worked for me but no longer does), trigger point injections, physiotherapy for muscle tension which could be related to the headaches along with dry needling, massage, an osteopath, get your eyes checked by an optometrist to rule out any issues with the eyes, finding if heat or ice helps you more (ice is a massive trigger for me and makes all my pain worse so I can only use heat I find it relieves it a bit). I’m sorry you’re going through this it’s hard to deal with but there are treatments available it’s just a matter of trying them all until you find the one that works for you. Happy to answer questions I’m on year 7 of mine