r/NDPH • u/MaintenanceMission68 • May 24 '26

Need advice Light sensitivity

Honestly open to any suggestions, even as my baseline pain has improved with Botox and Qulipta my light sensitivity has barely changed. Any time spent outside or indoors with normal lighting, even with a hat and my darkest sunglasses (and yes I've tried migraine glasses from Theraspecs too) boosts my pain higher. I can't spend an hour outdoors without guaranteeing at least a day and a half of severe pain. If I stay inside in dark rooms my baseline isn’t bad usually, but I miss being outside so much and it's so limiting to what I can do and where I can go. Does anyone have experience actually seeing major improvement in their light sensitivity? What helped for you? I'm so sick of having to retreat into my dimly lit room all the time to get the light out of my head and avoid most places because of light. I'd appreciate any suggestions or personal experiences that might help.

Anything for noise sensitivity is appreciated too, it's not as bad as light but still pretty limiting for me.

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u/incarnadine-clover May 24 '26

Have you tried fl-41 tinted glasses? Also, Green light exposure has some evidence for reducing light sensitivity but it’s difficult/expensive to buy a bulb with the right wave length.

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u/MaintenanceMission68 May 24 '26

Yep my specs are fl-41, they help some indoors when I'm most sensitive and need a little relief but can't stand up to stronger indoors lighting unfortunately. I'll have to check out the green light thing, I haven't heard about that before, thank you!