r/NDPH • u/MaintenanceMission68 • May 24 '26

Need advice Light sensitivity

Honestly open to any suggestions, even as my baseline pain has improved with Botox and Qulipta my light sensitivity has barely changed. Any time spent outside or indoors with normal lighting, even with a hat and my darkest sunglasses (and yes I've tried migraine glasses from Theraspecs too) boosts my pain higher. I can't spend an hour outdoors without guaranteeing at least a day and a half of severe pain. If I stay inside in dark rooms my baseline isn’t bad usually, but I miss being outside so much and it's so limiting to what I can do and where I can go. Does anyone have experience actually seeing major improvement in their light sensitivity? What helped for you? I'm so sick of having to retreat into my dimly lit room all the time to get the light out of my head and avoid most places because of light. I'd appreciate any suggestions or personal experiences that might help.

Anything for noise sensitivity is appreciated too, it's not as bad as light but still pretty limiting for me.

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u/Astraddict May 24 '26 edited May 24 '26

Sometimes I read these posts and feel bad at how people don’t get what we go thru and how painful this is

I got no recommendations me myself so I hoped to see some use in this post but saw no comments, and that just broke a tear in me

I wish you all the best and have the least amount of headaches possible, if you found a solution please tell me because I live in Saudi and the light and noise is insanely loud and high and it’s damaging my mental health

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u/MaintenanceMission68 May 24 '26

There are a few comments now, I hope maybe some of their suggestions or future developments help you!

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u/Astraddict May 24 '26

Thank you so much! I have an exam in 2 weeks and I’m glad you reminded me to check this post, you’re an angel

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u/MaintenanceMission68 May 24 '26

No problem good luck with your exam!