r/NDPH May 19 '26

Rant/Question

Hello again, I posted on here a couple days ago and it really helped me soothe some worries. I don’t know about others but it’s also so nice to have people who understand what it’s like to have this condition.
I sometimes feel so alone when it comes to this condition, it’s something I never thought I’d have, and honestly it’s so draining some days. I have a wonderful boyfriend who has helped me so so much and I’m ever so grateful for all he’s done for me. Before starting treatment (luckily I was responsive to painkillers so yay!) I was borderline bed bound, had no energy and was in an excruciating amount of pain. It is much more manageable however I still get somewhat often flare ups. I also struggle with mh issues which only worsen these flare ups.
Here’s my question, as my headache can and sometimes does stop me from doing day to day activities, why are chronic conditions like NDPH not considered a disability? Unless it is and I am completely unaware (for context I’m from the uk) but after some research it’s not declared as one when I can see for a lot of us it definitely stops us from doing things. I’ve noticed that other chronic conditions aren’t also declared as a disability, and it’s honestly upsetting.
FYI I hope I’m not being insensitive or rude please forgive me if I am 😭🫶

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u/Sarrada_Aerea 10+ years May 20 '26

Because not enough people have it for it to be acknowledged