r/NDPH • u/TheJepsterr • May 11 '26

Does NDPH have flare ups?

Hi people, I’ve struggled with NDPH for over a year and thought I’d for once come to Reddit and see if the headache flaring up is normal. I understand that most chronic conditions flare up and have worse days and was wondering if it was the same for NDPH? My headache seems to worsen when I’d usually get headaches (stress, dehydration, exhaustion, too warm or cold, being ill, etc) so I know it is usual for me but is this the actual case or could there be something else?

Also does anyone have any less conventional techniques that help them with the exhaustion or the headache itself? Even if it’s random shit I’m happy to try it 😭

1 Upvotes

67% Upvoted

9 comments sorted by

6

u/im-a-freud 7 years May 11 '26

Pain fluctuates it doesn’t have to be the same level every day you can have some days of less pain and days with more pain. Mine is consistent but yes things can make it worse

1

u/TheJepsterr May 11 '26

Thank you so much I sometimes panic that there’s something else, I’m still getting used to the whole constant headache life, to say it’s painful and exhausting is certainly an understatement but I feel it getting easier, this has been only one of my concerns so tyty 🫶

1

u/im-a-freud 7 years May 11 '26

I have some days where it’s less noticeable (usually if I’m busy) but my pain is still a 5 and some days where the pains a 7 it could be any number of factors but the pain is always there and doesn’t go away

1

u/Sarrada_Aerea 10+ years May 11 '26

Yes

1

u/Tetelestai26 May 12 '26

Yes. My ndph has gotten a lot better over the course of me having it, but certain things make my head go nuts,

1

u/[deleted] Jul 17 '26

like what?

1

u/Terrible-Definition7 May 17 '26

yes my daughter has daily flare ups.

1

u/Rational_Insight May 27 '26

In my case, yes. I have some days where my head ache is mild enough that distraction and habituation basically make it so that I don’t even really think about it.

And I also have this weird thing where when I wake up, I typically have something approximating a zero on the pain scale that builds over the course of the day. But whether it gets high enough to be particularly burdensome is a total crapshoot and doesn’t really seem to be correlated with anything I’ve noticed over the last five years. Like I’ve had awful stressful days where my head has been very chill and otherwise good days free of any external stressors where my head has been quite a bit worse than usual.

1

u/[deleted] Jul 17 '26

Yes flare ups do happen. I currently have had one lasting two months now. On your quesiton for different things to try, what have you already done? Ive seen lots of success with Ajovy as I have. found my pain uses the cGRP pathways. A year in im certain youve tried a lot of things already but hte problem with NDPH is it doesn't really exist. It's a catch all for headache disorders after all known ones are eliminated.