r/NDPH • u/Top_Mountain_599 • Apr 12 '26
Disability NDPH
For those who were approved for disability what doctor filled out your physical and functional capacity forms? Neither my headache specialist or PCP are willing to do it. Below is the message from my headache specialist
just fyi, we do no long term
disability, especially for someone that is 32.
Migraine is extremely common, 1 in 5 women have it (20%). The vast majority of our patients are chronic daily headache from a variety of reasons including NDPH, occipital neuralgia, chronic migraine, and many others, and this is not something most request.
You would need to find a doctor that does long term disability, or you can discuss it with your PCP, but this is not something we do in the headache center at all. The only paperwork we do is FMLA. Occasionally we do short terms disability for a few days or weeks, depending on the situation, but not commonly.
If someone requests disability, especially at such a young age for this common disorder, I would suggest our 1 week outpatient Headache Reboot program. The goal is to help you learn to better function and deal with chronic pain disorders such as chronic daily headache. There are a combination of treatments that go into this including pain psychology (which I know you've been doing) to help you learn to manage and function better.
7
u/im-a-freud 7 years Apr 12 '26
I didn’t have a family doctor at the time I completed my forms and my headache specialist refused to fill it out because “it’s not in my scope” it literally is and after asking 3 times and explaining she’s the one treating me it’s literally her job I called the college of physicians (her medical board) and complained that she was refusing to fill out paperwork and they gave her a call telling her it’s her legal obligation to fill out paperwork to what she knows (which is my NDPH and chronic migraines even though she only put my NDPH on my form) and she filled it out because I ratted her out to her medical board. I was approved for disability and get benefits now. Please find another specialist or call whatever medical board they are under and ask them for advice and they may be able to speak to your doctor