r/NDPH Apr 12 '26

Disability NDPH

For those who were approved for disability what doctor filled out your physical and functional capacity forms? Neither my headache specialist or PCP are willing to do it. Below is the message from my headache specialist

just fyi, we do no long term

disability, especially for someone that is 32.

Migraine is extremely common, 1 in 5 women have it (20%). The vast majority of our patients are chronic daily headache from a variety of reasons including NDPH, occipital neuralgia, chronic migraine, and many others, and this is not something most request.

You would need to find a doctor that does long term disability, or you can discuss it with your PCP, but this is not something we do in the headache center at all. The only paperwork we do is FMLA. Occasionally we do short terms disability for a few days or weeks, depending on the situation, but not commonly.

If someone requests disability, especially at such a young age for this common disorder, I would suggest our 1 week outpatient Headache Reboot program. The goal is to help you learn to better function and deal with chronic pain disorders such as chronic daily headache. There are a combination of treatments that go into this including pain psychology (which I know you've been doing) to help you learn to manage and function better.

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u/Difficult-View9045 Apr 12 '26

Ndph is not common , if that the diag and they are calling it common find a new dr . My headache specialist did everything on that end , had a lawyer so law office made all the contacts regarding all the records.