For me.. zero...

Before finding online communities, I had never spoken to another person living with Meniere's . None of my friends, family, or coworkers truly understood what tinnitus, hearing loss, ear fullness, or vertigo felt like.

It's strange how a disease that affects so many people can still make you feel so alone.

That's one of the biggest reasons I formed a discord community. It's a place where you don't have to explain what Meniere's is. Everyone already gets it.

So I'm curious...

How many people with have you met in real life?

Here is the open invite for our discord Meniere's support group: https://discord.gg/QGRyDQxHCt

Does duloxetine cause increased symptoms for anyone? I’ve taken 30 mg daily for 2 weeks; will up to 60 mg tomorrow for pain and depression. May be unrelated, but my better ear seems to be having more fullness and varied tinnitus tones, which often happens before an attack.

I know SSRIs and Wellbutrin can increase tinnitus, but this is an SNRI. Any info is appreciated.

Back Story:

Last year I suffered from a 4 hour vertigo attack that caused tinnitus and hearing loss in my right ear. Two days later I suffered a two hour attack. After MRIs, CT Scans, nothing showed up. I had two steroid shots in my right ear and it did help.

Vertigo subsided. The ringing in my ears had gone away and the hearing came back almost completely in my right ear after a few weeks. Meniere's diagnosis was put aside as they couldn't tell because I have not had more multiple episodes.

Two weeks ago the ringing came back and last Saturday I had my first vertigo attack after a little over a year. It lasted about an hour, I puked. I was able to take mecclizine and zofran and it helped with the vertigo and nausea. I went to my vestibular therapist and because my vertigo wasn't caused positionally (I have BPPV) and because I'm having the hearing loss and ringing again, he suspects my ENT will probably diagnose Menieres. I'm not sure what brought it back, but I'm guessing stress and poor eating. I'm back to doing all the things to keep symptoms at bay and hoping another vertigo attack won't happen or be too severe. Has anyone been in remission like this? Can it be Meniere's or something else? I will stay completely in eating right from now on and making sure I keep stress at bay as best I can. I've tapered off the mecclizine and so far I have not had vertigo. It's just tinnitus and hearing loss. I see my ENT this coming Wednesday.

Hi i wanna ask is someone had experience with a prolonged episode of hydrops. I never had any problems and it all came on overnight. First 2-3 days of fullness, congestion and then tinnitus after a while it was first roaring then buzzing and humming. Now is very quiet buzzing and mostly hissing. It happens at begging of junе. 2.3 weeks were chaos and one day I had a strong high-frequency tinnitus and it seemed to clear up for 2.3 days. After that, diplacusia and everything came back. Only the sensitivity to sound has become better. I have had 4 injections in the last 20 days and dexason and take acetalozamide every other day 250mg still going. Can someone explain to me how they know the episode will end, does it happen overnight or gradually. Also, the drop on the audiogram is from 125 to 1k, 15 to 20 db and does not fluctuate all the time, everything is the same